Supporting Someone with PANS PANDAS
These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can...
April 8, 2021
Therapy for Siblings of Children with PANS PANDAS
How therapy can help support a sibling of a child with PANS PANDAS Counseling can serve many purposes and each family’s specific needs should drive goals. Children with siblings with...
April 6, 2021
Fine Motor Skills & Handwriting Deterioration in PANS PANDAS
Development and Retention of Fine Motor and Handwriting Skills By Jennifer Leiman M.S. OTR/L PANS PANDAS can affect many aspects of daily functioning. One of the categories of the PANS...
March 20, 2021
Anxiety in PANS PANDAS
Anxiety is a major symptom of PANS and PANDAS. See more about the PANS PANDAS Diagnostic Criteria and Symptoms. Generalized Anxiety, particularly Separation Anxiety, a hallmark...
March 20, 2021
Sleep Disturbances in PANS PANDAS
Sleep disturbances are common in children with PANS and are part of the diagnostic criteria. See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep...
March 20, 2021
ADHD & PANS PANDAS
A new onset of ADHD-like behaviors along with other PANS symptoms is one of the possible signs someone may have PANS...
February 21, 2021
PANDAS Physicians Network Diagnostic Flowchart and Treatment Guidelines
The PANDAS Physicians Network (PPN) flowcharts for diagnosis and treatment will help clinicians evaluate their patients and determine the best course of treatment. Guidelines and workflows were...
July 6, 2020
Education Series from New England Center for Health
ASPIRE is happy to announce that New England Center for Health, lead by Dr. Nancy O’Hara (ASPIRE Professional Advisory Board Member), Dr. Lindsey Wells, and Vicki Kobliner will host zoom calls...
June 4, 2020
ASPIRE Series on COVID-19
In response to the COVID-19, a global pandemic, that has affected all of our lives, ASPIRE is putting together a series of Q&As from a variety of professionals. We will be updating this resource...
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and...
October 28, 2019
ASPIRE & Dr. Maeve O’Connor – Prepping for Immunology Appointments
Preparing for Immunology Appointments & What Immunologists Should Know About PANS Wendy Nawara, MSW, ASPIRE Past President & Founding Board Member, interviews Maeve E. O’Connor, MD FACAAI...
July 11, 2019
Contact ASPIRE – Get Support
Whether you are just starting to explore the possibility of a PANS/PANDAS diagnosis or you have weathered several flares, we ASPIRE to support the needs of families and patients living with...
We aspire to solve.
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]