June 15, 2021
PANS PANDAS Appointment Checklist & Worksheets
Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results,...
June 15, 2021
PANS PANDAS Symptoms Tracking and Rating Scales – Worksheet
Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and...
June 3, 2021
PANS PANDAS and Tourette Syndrome – The Overlap
PANS/PANDAS is not the same as traditional OCD or a tic disorder; the onset and concurrent symptoms and, in some cases, the severity of the OCD set these disorders apart....
June 1, 2021
Dr. Swedo on Relationship between PANS & PANDAS and Tourette’s syndrome
What is the relationship between PANS & PANDAS and Tourette Syndrome? Susan Swedo, MD and Gabriella True sit down to discuss the relationship between PANS & PANDAS and Tourette syndrome....
June 1, 2021
Sensory & Motor Abnormalities & Tics in PANS PANDAS
Sensory & Motor Abnormalities are one of the main PANS PANDAS symptom categories In PANS, sensory and motor abnormalities both fall into one of the seven categories of the PANS...
May 27, 2021
Advocate Early and Often! No Experience Needed!
It is never too early to become a PANS PANDAS advocate! Public awareness of PANS PANDAS happens one person at a time, and we need your help! Increasing awareness improves...
May 20, 2021
PANS PANDAS Student Excellence Award
Our students are PANS PANDAS strong! As we begin to wrap up the school year, we see many kids receiving praise for scholastic achievement. Let us take the time...
May 1, 2021
Autism and PANS PANDAS & Handout
PANS/PANDAS patients are commonly misdiagnosed with Autism, Tourette’s Syndrome, OCD, bipolar disorder, ADHD, Oppositional Defiance, or with an eating disorder. However, PANS/PANDAS patients can...
May 1, 2021
Handout – PANS/PANDAS vs. OCD
At first glance, someone PANS and someone with OCD may appear pretty similar. They both have obsessions, compulsions, anxiety, and these symptoms cause significant distress, interfere with daily...
Supporting Someone with PANS PANDAS
These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can...
April 8, 2021
Therapy for Siblings of Children with PANS PANDAS
How therapy can help support a sibling of a child with PANS PANDAS Counseling can serve many purposes and each family’s specific needs should drive goals. Children with siblings with...
April 6, 2021
Fine Motor Skills & Handwriting Deterioration in PANS PANDAS
Development and Retention of Fine Motor and Handwriting Skills By Jennifer Leiman M.S. OTR/L PANS PANDAS can affect many aspects of daily functioning. One of the categories of the PANS...
We aspire to solve.
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]