PANS recovery is not a straight trajectory. PANS is relapsing and remitting, and there can be setbacks during periods of treatment and healing. Communication helps the team (parents, school staff,...
PANS & Eating Restrictions This section on Restrictive Eatings at School is part of a larger section on Restrictive Eating seen in PANS PANDAS. Make sure to read the entire section too. PANS...
A the start of a school year parents of students with PANS PANDAS should schedule a time to meet with their child’s new team including teachers, therapists, guidance counselors, etc. If the student...
You are your child’s best advocate, and we are here to help! The 504 and IEP planning process may seem overwhelming, but these educational sections will help you navigate the process. School...
Read Getting Started with 504 & IEP Plans first. Many PANS PANDAS kids will qualify for a 504 plan. A 504 plan will provide accommodations for the educational program within the regular...
Read Getting Started with 504 & IEP Plans first. Special Education is provided through the Individualized Education Program (IEP) for a student with a qualifying disability. The primary purpose...
How to Ask for an Evaluation Written Request – Put all requests and correspondence in writing. Ask for an evaluation and explain why Provide medical documentation of diagnosis and supporting...
Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is not always...
Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s refusal to...
Students with PANDAS/ PANS may experience symptoms simply from being exposed to an infection. It is vital for the School Nurse to foster communication between the entire school population about who...
It is essential that you contact your state representatives in Congress IMMEDIATELY; significant efforts are underway to remove IDEA obligations at the federal level, as well as other educational...