October 23, 2022
New IVIG Study
In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a...
October 5, 2022
About PANS PANDAS from ASPIRE Video
Learn more about PANS PANDAS PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven...
September 28, 2022
What do you want people to know about PANS PANDAS?
Please help ASPIRE with a PANS Awareness Day project. Please submit one or two sentences on “What do you want people to know about PANS/PANDAS?” via the form below. We...
September 19, 2022
The Invisible Cost Of Caring For A Child With A Health Condition
“So many people say, ‘What are you doing for yourself?’ which is a nice sentiment, but it just further divides me and those people,” Taylor said. “What they don’t understand is that I...
August 18, 2022
Toolkit – PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurses
PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurse PANS PANDAS in the School Setting – Impacts and Supports This PANS PANDAS Comprehensive Educator...
February 21, 2022
PANDAS is Autoimmune Encephalitis
"Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infection or PANDAS can also be called post-streptococcal autoimmune basal ganglia...
February 15, 2022
Sibling Support
We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read...
July 24, 2021
PANS & Eating Restrictions at School & Handout
PANS & Eating Restrictions This section on Restrictive Eatings at School is part of a larger section on Restrictive Eating seen in PANS PANDAS. Make sure to read the entire...
June 15, 2021
Medication Log Sheet
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...
June 15, 2021
PANS PANDAS Appointment Checklist & Worksheets
Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results,...
June 15, 2021
PANS PANDAS Symptoms Tracking and Rating Scales – Worksheet
Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and...
June 3, 2021
PANS PANDAS and Tourette Syndrome – The Overlap
PANS/PANDAS is not the same as traditional OCD or a tic disorder; the onset and concurrent symptoms and, in some cases, the severity of the OCD set these disorders apart....
We aspire to solve.
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]