ASPIRE Blog

On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first time.

Tuesday, December 17 – 7:00 PM Eastern

Zoom – Thursday, January 23 – 7:00 PM Eastern

About 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume anything.

Menendez CM, Zuccolo J, Swedo SE, Reim S, Richmand B, Ben-Pazi H, Kovoor A, Cunningham MW. Dopamine receptor autoantibody signaling in infectious sequelae differentiates movement versus neuropsychiatric disorders. JCI Insight. […]

Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th, 2024.

🌟 Join IOCDF for a Special PANS PANDAS Town Hall! 🌟 As part of PANS PANDAS Awareness Week, the IOCDF is hosting an incredible Town Hall featuring three inspiring voices: […]

In late November of 2023, we noticed that our daughter, Sammi, had a limp. She had fallen and said her knee hurt. The next week, she began acting very tired […]

  Current Legislative Action Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan. If you are a Michigan parent of a […]

What is the cost of not treating PANS/ PANDAS promptly & appropriately? We recently sat down with Susan Swedo, MD, to discuss a critical topic: the cost of inaction when […]

Melamed, Isaac, et al.“IVIG Response in Pediatric Acute-onset Neuropsychiatric Syndrome Correlates with Reduction in Pro-inflammatory Monocytes and Neuropsychiatric Measures.”Frontiers in Immunology, vol. 15, 2024, p. 1383973, https://doi.org/10.3389/fimmu.2024.1383973. Accessed 3 Oct. […]

California Legislative Action Please follow this page and ASPIRE’s social media for updates – Facebook and Instagram. Please contact CALPANS with questions regarding California legislative efforts and ways you can get involved today. […]