West Virginia PANS PANDAS Updates
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric disorders.
Read moreWV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric disorders.
Read moreTrigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please proceed with care. If you […]
Read moreWu, X., Hao, J., Jiang, K. et al. Neuroinflammation and pathways that contribute to tourette syndrome. Ital J Pediatr 51, 63 (2025). https://doi.org/10.1186/s13052-025-01874-3 Tourette Syndrome (TS): A neurodevelopmental disorder characterized […]
Read moreThe deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on Tuesday.
Read moreZoom – Restricted Eating ChitChat – Tuesday, April 1 – 6:30 PM CT
Read moreVirginia PANS PANDAS Updates Virginia Alliance for PANS/PANDAS Action (VA4PA) is leading legislative efforts. Please contact them directly for more information. Their website is VA4PA and their email is […]
Read moreHomeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive difficulties, and fatigue may make […]
Read moreGallant RM, Sanchez KK, Joulia E, Snyder JM, Metallo CM, Ayres JS. Fluoxetine promotes IL-10-dependent metabolic defenses to protect from sepsis-induced lethality. Sci Adv. 2025 Feb 14;11(7):eadu4034. doi: 10.1126/sciadv.adu4034. Epub […]
Read moreFor up-to-date information on Oregon’s legislative action: Make sure to follow NWPPN’s Facebook page for updates and questions. To contact NWWP directly, please email them – NWPPN’s Email. 2025 […]
Read moreRestricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find appropriate support and treatment tailored […]
Read moreThe Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for after meeting a large deductible. They accumulated $6,000 in medical debt. They started a GoFundMe campaign in 2024 to pay for the infusions.
Read moreZoom – Thursday, February 13 – 10:00 AM Mountain
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