ASPIRE Blog

Federal Update: Advancing Research and Recognition for PANS/PANDAS ASPIRE does not lead federal legislative efforts, but we actively support federal initiatives that advance research, federal recognition, and improved coordination of […]

Share your contact information to receive updates specific to PANS/PANDAS in Vermont, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you will not be added to ASPIRE’s general mailing list—this is strictly for Louisiana-based updates.

2026 Legislative Session Please check back for information for the 2026 Legislative Session. In the meantime, please fill out the Connecticut Contact Form.  Please see below for Bill Information and […]

    2026 Pennsylvania PANS PANDAS Legislation For more information, please reach out to Pennsylvania State Leads Bonnie Markowitz and Kathy Rubel. See below for the Current Call to Action […]

This article is for kids and teens living with PANS/PANDAS. It explains the conditions, what symptoms might look like, what you need, what’s okay to feel, and reminders that you’re not alone. This page is written just for kids and teens, and explained simply so everyone can understand. It doesn’t have all the answers, but hopefully we can help you get started!

This article is for kids and teens who don’t have PANS/PANDAS themselves, but have a friend or sibling who does. It explains the conditions, what symptoms might look like, and how you can support someone you care about.

  Current Legislative Action Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan. If you are a Michigan parent of a […]

                      What a great night at Skate Away the Stigma 🏒💚 Huge thanks to our Nebraska leads, Grace Troupe and […]

Zoom – Friday, Jan 23- 12:00 PM Central

Zoom – Wed, January 21, 7:00 pm

The Patient 360 Conference is a free, virtual event created just for patients, families, and caregivers. You’ll get expert-led sessions, real-world tools, and a supportive community to help you feel more informed, empowered, and in control of your care.

Children and adolescents typically experience mild or asymptomatic acute COVID-19. However, a significant subset develop persistent symptoms, commonly termed long COVID or post-COVID condition. Definitions in pediatrics are inconsistent. Some frameworks differentiate ongoing symptoms lasting 4 to 12 weeks from post-COVID syndrome beyond 12 weeks, while others use long COVID as a general term. This variability matters because symptoms are diverse, may fluctuate, and are often misattributed to stress, disrupted schooling, or normal adolescent development. The research base is also highly heterogeneous in study design, follow-up duration, and case definitions.