ASPIRE Blog

Lacy was an outgoing, fun nine-year-old. Then, one night, everything changed. She became a shell of herself.

Her mother, Crystal, 30, from Illinois, told Newsweek she can only describe last year as “hell.” Doctors said her first-born had anxiety and depression — but Crystal’s instincts told her something else was happening.

College with PANS/PANDAS: Your Story Matters Starting college can be challenging for any young adult. For students living with PANS/PANDAS, the transition often comes with added layers—managing health, navigating accommodations, […]

Starting college is an exciting milestone, but for students with PANS/PANDAS, the transition can feel especially overwhelming. Balancing academics, health needs, and independence requires careful planning and support. The good […]

Missouri Legislative Action is lead by Annie Steil at Missouri PANS/PANDAS Coalition (Facebook and Instagram). Please contact her directly to become involved in legislative advocacy in Missouri.  Please see below […]

Zoom – Thurs, December 18, 7:00 PM Eastern

Lång U, Metsälä J, Ramsay H, Boland F, Heikkilä K, Pulakka A, Lawlor A, O’Connor K, Veijola J, Kajantie E, Healy C, Kelleher I. Doxycycline Use in Adolescent Psychiatric Patients […]

Parents say their children seemingly change overnight, displaying dangerous behaviors that often mimic symptoms of obsessive-compulsive disorder or schizophrenia. However, getting a proper diagnosis can be difficult. Three Louisiana families are sharing their stories to raise awareness about a misunderstood condition often triggered by something as common as strep throat.

    2025 Pennsylvania PANS PANDAS Legislation Call to Action 📣 Call to Action for Pennsylvania Advocates! Join PA State Leads Bonnie Markowitz and Kathy Rubel for a PANS/PANDAS Advocacy […]

  WFFT-TV 55 News By: David Tilmans, Oct 9, 2025 Watch Newscast and Read Article FORT WAYNE, Ind. (WFFT) – – The Dr. Martin Luther King, Jr. Memorial Bridge is […]

I want to thank our entire community for participating in PANS PANDAS Awareness Day yesterday. Your posts, lights, and conversations made a powerful impact. Today is World Mental Health Day, […]

Daily Herald – Suburban Chicago’s News Source October 06, 2025 On Thursday, Oct. 9, the Millennium Carillon in Naperville will light up green in honor of World PANS/PANDAS Awareness Day, […]

By Gabriella True, President, Alliance to Solve PANS & Immune-Related Encephalopathies (ASPIRE) Each year, countless children and adults with PANS PANDAS lose critical time, time when early diagnosis and proper […]