Current Legislative Action
Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan.
If you are a Michigan parent of a PANS/PANDAS child, please join the discussion on the Michigan PANS/PANDAS/Autoimmune Enceph/Great Lakes Facebook Group. This is a private group, and member requests are screened.
In the News
Detroit News – A totally new kid’: Parents push for coverage of controversial IV treatment for brain condition – See Story
General Legislative Information
- How to talk to your state representative
- Find your State Representative and State Senator in your district
- ASPIRE Legislative Action: Information for Legislators Toolkit
- Legislative Talking/Writing Points and Examples
- Visit Section Today!
- What to Include in Testimony Letters and Talking Points
- Impact Statement Examples
- About PANS/PANDAS Examples
- Short Form Support Emails
- Visit Section Today!
Call to Action Items
Help Advance PANS/PANDAS Insurance Legislation in Michigan!
Legislation to require insurance coverage for PANS/PANDAS is gaining momentum in Michigan — but your voice is urgently needed.
Here’s how you can help:
✅ 1. Attend the House Child Welfare System Subcommittee Hearing
Showing up matters. Join us in Lansing to demonstrate public support and help make the case for a House bill. Even if you don’t plan to testify, simply being present makes a powerful impact. Join us prior to the hearing to meet MIPPA’s lobbyist, Melissa, from the Kelley Cawthorne office, to connect with others, and review the hearing format. We will walk together to the House Office Building.
House Child Welfare System Subcommittee Hearing Details
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Date: Tuesday, August 26, 2025
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Pre-Hearing Meet Up Time: 9:00–9:30 AM
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Hearing Time: 10:30 AM – 12:00 PM
- Pre-Hearing Meeting Location: Kelley Cawthorne, 208 N Capitol, 3rd Floor, Lansing, MI
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Hearing Location: House Office Building, Room 308, 124 N Capitol Ave, Lansing, MI
Post-Hearing Lunch
All attendees — whether testifying or observing — are invited to return to Kelley Cawthorne for lunch afterward.
Parking
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North Capitol Parking Garage, 316 N Capitol Ave
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North Grand Parking Garage, 219 N Grand Ave
Note: There is significant construction in Lansing and on I-94. Please plan extra travel time.
✅ 2. Contact the House Child Welfare System Subcommittee
Let committee members know Michigan families need timely, affordable access to care for PANS/PANDAS — and that you support insurance coverage legislation.
📩 Contact Info for Committee Members – see below
💬 Outreach Language: Writing Points
✅ 3. Reach Out to Your State Legislators
Encourage your State Representative and Senator to support insurance coverage legislation. Even before a House bill is introduced, early support is essential.
🔎 Find your legislators: Legislator Look Search Tool
🔜 4. Coming Soon: Senate Committee Advocacy
The Senate Bill SB447 has been introduced, but a hearing has not yet been scheduled. Once the committee is back in session, we’ll share more about how you can help.
ASPIRE Letters of Support
- ASPIRE Executive Board Support for SB447: Read pdf
- ASPIRE Professional Advisory Support for SB447: Read pdf
- ASPIRE Executive Board Support House Request: Read pdf
- ASPIRE Professional Advisory House Request: Read pdf
Current Michigan Legislation
SB447 of 2025
Bill Title: Insurance: insurers; coverage for certain pediatric autoimmune neuropsychiatric disorders; require. Amends 1956 PA 218 (MCL 500.100 – 500.8302) by adding sec. 3406pp.
Bill Status:
Bill Language: SB447
Sponsored By: Senator Kevin Hertel (D, District 12)
Co-Sponsors: Rosemary Bayer (D, District 13), Erika Geiss (D, District 1), Edward W. McBroom (R, District 38), Sean McCann (D, District 19), Sue Shink (D, District 14), Sam Singh (D, District 28)
Address letters to: Dear Senator Kevin Hertel and Senate Health Policy Committee Members,
Senate Health Policy Committee – Main Page
Senate Health Policy Committee Members Emails:
SenKHertel@senate.michigan.gov; SenSSantana@senate.michigan.gov; SenPWojno@senate.michigan.gov; SenJCherry@senate.michigan.gov; SenVKlinefelt@senate.michigan.gov; SenEGeiss@senate.michigan.gov; SenMWebber@senate.michigan.gov; senRHauck@senate.michigan.gov; senMHuizenga@senate.michigan.gov; senJRunestad@senate.michigan.gov
House Child Welfare Systems Committee Members Emails:
Please note, there is no House Bill at the moment. We are only writing this subcommittee to encourage them to write one.
Address letters to: Dear Rep. Luke Meerman and the House Subcommittee on Child Welfare Systems
LukeMeerman@house.mi.gov, AngelaRigas@house.mi.gov; JenniferConlin@house.mi.gov; BradPaquette@house.mi.gov; SharonMacDonell@house.mi.gov
Past Michigan Legislation
SB1030 of 2024
Bill Title: Insurance: insurers; coverage for certain pediatric autoimmune neuropsychiatric disorders; require. Amends 1956 PA 218 (MCL 500.100 – 500.8302) by adding sec. 3406pp.
Bill Summary: To require insurance coverage for certain pediatric autoimmune neuropsychiatric
disorders.
Bill Status:
Bill Language: Link
Sponsored By: Kevin Hertel (D, District 12)
Co-Sponsors: John Damoose (R, District 37), Sam Singh (D, District 28
Past Legislative Action
HB5773 of 2024
Bill Title: Insurance: insurers; coverage for certain pediatric autoimmune neuropsychiatric disorders; require. Amends 1956 PA 218 (MCL 500.100 – 500.8302) by adding sec. 3406pp.
Bill Status:
Bill Summary: To require insurance coverage for certain pediatric autoimmune neuropsychiatric disorders.
Bill Language: HB5773
Sponsored By: Kelly Breen (D, District 21)
Co-Sponsors: Noah Arbit (D, District 20), Jimmie Wilson Jr (D, District 32), Erin Byrnes (D, District 15), Samantha Steckloff (D, District 19), Sharon MacDonell (D, District 56), Carrie Rheingans (D, District 47), Felicia Brabec (D, District 33), Veronica Paiz (D, District 11), Stephania A. Young (D, District 16), Mike McFall (D, District 8), Emily Dievendorf (D, District 77), Phil Skaggs (D, District 80), Mai Xiong (D, District 80), Jason Morgan (D. District 23), Julie Rogers (D, District 41), Rachel Hood (D, District 81), Jenn Hill (D, District 109), Penelope Tsernoglou (D, District 75), Alabus Farhat (D, District 3), Kara Hope (D, District 74), Joey Andrews (D, District 38), Denise Mentzer (D, District 31), Jason Hoskins (D, District 18), Helena Scott (D, District 7)
HB5804 of 2024
Bill Title: Health: other; advisory council for pediatric autoimmune neuropsychiatric disorders; create. Amends 1978 PA 368 (MCL 333.1101 – 333.25211) by adding sec. 5143.
Bill Status: HB5804 of 2024
Bill Summary: To create an advisory council on pediatric autoimmune neuropsychiatric disorders.
Bill Language:
Sponsored By: Luke Meerman (R, District 89)
Co-Sponsors: none
HB6521 of 2022
Bill Summary: To require insurance coverage for certain pediatric autoimmune neuropsychiatric disorders.
Bill Status: HB6521 of 2022 [LC6]
Sponsored By: Kelly Breen (D)
Co-Sponsors: Luke Meerman (R), David LaGrand (D), Brenda Carter (D), Kara Hope (D), Richard Streenland (D), Sara Cambensy (D), Alex Garza (D), Ronnie Petersen (D), Timothy Beson (R), Tullio Liberati (D), Kevin Coleman (D), Jim Ellison (D), Cynthia Johnson (D), Helena Scott (D), Julie Rogers (D)
HB6522 of 2022
Bill Status: HB6522 of 2022
Bill Summary: To create an advisory council on pediatric autoimmune neuropsychiatric disorders.
Sponsored By: Luke Meerman (R)
Co-Sponsors: Kelly Breen (D), David LaGrand (D), Brenda Carter (D), Kara Hope (D), Richard Streenland (D), Sara Cambensy (D), Alex Garza (D), Ronnie Petersen (D), Tullio Liberati (D), Timothy Beson (R), Kevin Coleman (D), Jim Ellison (D), Cynthia Johnson (D), Helena Scott (D), Julie Rogers (D)
HB4302 of 2019
Bill Status: HB4302 of 2019
Bill Summary: To create an advisory council on pediatric autoimmune neuropsychiatric disorders.
Sponsored By: Aaron Miller (R)
Co-Sponsors: Julie Calley (R)
HB5035 of 2017
Bill Status: HB5035 of 2017
Bill Summary: To require insurance coverage for certain pediatric autoimmune neuropsychiatric disorders.
Sponsored By: Martin Howrylak (R)
Co-Sponsors: Aaron Miller (R), Joseph Graves (R), Jon Hoadley (D
HB5036 of 2017
Bill Status: HB5036 of 2017
Bill Summary: To create an advisory council on pediatric autoimmune neuropsychiatric disorders.
Sponsored By: Aaron Miller (R)
Co-Sponsors: Martin Howrylak(R), Joseph Graves (R), Jon Hoadley (D), Stephanie Chang (D)
Gabriella True
