Georgia PANS PANDAS Action Updates

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SB5 Passes!

Bill SB 5Status Update 

Bill Language: Read PDF Note: Key details begin in Part II, Section 2-1

Passed: 04/04/2025

A BILL to be entitled an Act to amend Chapter 46 of Title 33 of the Official Code of Georgia Annotated, relating to certification of private review agents, so as to provide for health insurers to implement and maintain a program that allows for the selective application of reductions in prior authorization requirements under certain circumstances; to provide for an annual filing; to provide for the promulgation of rules and regulations; to provide for related matters; to provide for an effective date and applicability; to repeal conflicting laws; and for other purposes.
All health benefit policies issued or renewed on or after July 1, 2025, shall include coverage for healthcare services for PANDAS or PANS for an individual covered under such policy as provided in this Code section.

ASPIRE Letters of Support

2025 Bills

Watch 11alive.com News Coverage.

How a Georgia House bill could create options in treating a devastating pediatric diagnosis


Watch House Session Day 22: 02.24.25

Thank you to Representative Scoggins for bringing the bill to the floor in honor of your granddaughter. Thank you to Representative Lumsden for sharing the story of your granddaughter and supporting the bill. Thank you to Representative Clark for supporting the bill and supporting one of our dear families.

SB205 – Insurance; pediatric autoimmune neuropsychiatric disorders; require coverage for healthcare services

Bill Status & LanguageLink

Summary: A BILL to be entitled an Act to amend Article 1 of Chapter 24 of Title 33 and Article 1 of Chapter 18 of Title 45 of the Official Code of Georgia Annotated, relating to general provisions relative to insurance and the state employees’ health insurance plan and post-employment health benefit fund, respectively, so as to require coverage for healthcare services for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection (PANDAS) and pediatric acute onset neuropsychiatric syndrome (PANS) in accordance with nationally recognized clinical practice guidelines; to provide for definitions; to allow for deductibles; to prohibit special deductibles; to provide for rules and regulations; to provide for related matters; to repeal conflicting laws; and for other purposes.

HB124 – Insurance; require coverage for healthcare services for pediatric autoimmune neuropsychiatric disorders; provisions

Bill Status & LanguageLink

Summary: A BILL to be entitled an Act to amend Article 1 of Chapter 24 of Title 33 and Article 1 of Chapter 18 of Title 45 of the Official Code of Georgia Annotated, relating to general provisions relative to insurance and the state employees’ health insurance plan and post-employment health benefit fund, respectively, so as to require coverage for healthcare services for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection (PANDAS) and pediatric acute onset neuropsychiatric syndrome (PANS) in accordance with nationally recognized clinical practice guidelines; to provide for definitions; to allow for deductibles; to prohibit special deductibles; to provide for rules and regulations; to provide for related matters; to repeal conflicting laws; and for other purposes.

 

For more information: Contact Heather Ward – SEPPA President, via email.


General Legislative Information

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  • How to talk to your state representative
  • Find your State Representative and State Senator in your district
  • ASPIRE Legislative Action: Information for Legislators Toolkit
  • Legislative Talking Tips
  • Legislative Writing Points and Examples
    • Visit Section Today!
      • What to Include in Testimony Letters and Talking Points
      • Impact Statement Examples
      • About PANS/PANDAS Examples
      • Short Form Support Emails

Past Bills

 

  • HB140: Link
  • HB 140 Bill Language: Link

Key Elements of HB140

HB140 had strong sponsors from the House Health Committee. During the 2022-23 legislative session, the House and Senate Health committee passed HB1484 unanimously. Unfortunately, due to time constraints at the end of the 2022 legislative session, the bill died on the table.

HB140 is a very important step forward for minimizing the suffering of children and families affected by PANS/PANDAS in Georgia and around the country. So grateful for the leadership of Chairman Lee Hawkins and the long-term support and guidance of Rep. Karen Bennett and all of HB140’s sponsors. Stay tuned to find out how you can help.

  • HB1484 Bill language: Link
  • HB1484: Link

Key Elements of HB1484:

  • Diagnose and treat up to 100 kids each year for three years
  • Provide outreach to pediatric providers to help them quickly recognize, diagnose, and appropriately treat PANS PANDAS
  • Give providers guidance on coding claims to allow the Dept of Community Health to track the

ASPIRE Letters of Support:


Return to ASPIRE Legislative Resources

 

 

 

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