Join ASPIRE in donating plasma today to help minimize the shortage affecting PANS patients across the country. Donate plasma today! ASPIRE can help you set up the easiest plasma drive....
The endless advocating is always 100% worth...
You are your child’s best advocate, and we are here to help! The 504 and IEP planning process may seem overwhelming, but these educational sections will help you navigate the...
Read Getting Started with 504 & IEP Plans first. Many PANS PANDAS kids will qualify for a 504 plan. A 504 plan will provide accommodations for the educational program within...
Read Getting Started with 504 & IEP Plans first. Special Education is provided through the Individualized Education Program (IEP) for a student with a qualifying disability. The primary purpose...
How to Ask for an Evaluation Written Request – Put all requests and correspondence in writing. Ask for an evaluation and explain why Provide medical documentation of diagnosis and supporting...
Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is...
Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s...
Wendy Nawara – Founding Board Member Get a pet. Pets can provide a family with a concentration other than your sickness. Assign duties and expectations of caring for the pet,...
Susan Swedo, MD and Gabriella True of ASPIRE - Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS...
Navin Prasad, Stephanie Y. Johng, Daniel Powell, Matthew Williams, Elizabeth Latimer, Earl H. Harley, Role of tonsillectomy and adenoidectomy in parental satisfaction of treatments for PANDAS,...
Christine Kapetanakis – Board Member Lead with love. Do not yell or make your loved one with PANS more anxious than they are. Throw everything you know about reprimanding out...