This is the first of a series of interviews with influential PANDAS/PANS and Lyme advocates. How do they DO it? How do they contend with their own challenges as well as day-to-day life and advocacy fatigue? What can we learn from these incredible people?
From the hearts of some of the most resilient, hard-working, wanting-to-make-a-difference warriors… I introduce to you: Gabriella True.
How did you start on your advocacy path?
The day we suspect something is going on with our kids or ourselves is the day we become advocates. We may start simply by advocating for our families and ourselves, but we are also advocating for anyone else in our shoes. Sharing our experience and working on receiving more or better help only improves outcomes for those who come after us. The key to my resiliency is simple. I take energy to advocate from the journey; I start each day reflecting on all I have gleaned from my experiences while remembering our community’s collective needs and using them as my spark to roll up my sleeves and get to work.