The study illuminates how parents’ perceptions of the child’s symptoms, parents’ strategies for managing problems, as well as experiences related to healthcare providers, may increase or decrease parental stress.
- The analysis of interviews resulted in five identified categories, which together reflect aspects related to parental stress in parents of a child with PANS.
- The first three categories reflect parents’ appraisals related to the condition:
- “Being effected by PANS”
- “Experiencing PANS over and over again
- “Having no control”
- The fourth category, “Obtaining medical treatment is challenging”, entails appraisals related to contact with clinicians
- The fifth category, “Managing problems”, consists of strategies parents apply in order to manage problems related to having a child with PANS