Disruptions and Adaptations in Family Functioning: A Study of Families’ Experiences with PANS/PANDAS
Dolce, J.L., LaRusso, M.D. & Abadia-Barrero, C. Disruptions and Adaptations in Family Functioning: A Study of Families’ Experiences with PANS/PANDAS. J Child Fam Stud (2021). DOI:10.1007/s10826-021-02101-3
- Examined family functioning utilizing online parent forums and nine semi-structured interviews with PANS/PANDAS families.
- Unpredictability & relapsing-remitting nature of neuropsychiatric symptoms cause significant disruptions to daily life.
- Financial strain, social isolation, and lack of support from schools and medical institutions transform family functioning.
- Parents’ frequent use of trauma metaphors to describe experience diverges from literature on other chronic illnesses.