Share your PANS PANDAS Diagnosis Story with ASPIRE!
I like to reflect every year on the official day PANS PANDAS came into my family’s life. First Timmy was diagnosed and then two more followed way too many years later. I repost the same thing almost every year. – Gabriella True, ASPIRE President.
June 26, 2011 – Timmy officially diagnosed with PANDAS. We of course had suspicions already which is why I packed up T and X and got on a plane cross country to see a doctor that would help. For me, I felt lucky that I was able to go to a doctor that I knew would help him. We had been doing biomed for his autism already so we were already in a network of amazing MAPS doctors. He still has flares from time to time but at this point they are manageable. He is a tough nut kid with many medical issues but thankful we can keep progressing towards a happier and healthier future.
Do you remember the day your child officially got a diagnosis of PANS/PANDAS? Was it your first doctor? Was it your fifth? Were you devastated? Were you relieved to have an answer and the start of a treatment plan? Was your child diagnosed incorrectly prior to that? Email us at ASPIRE us your Diagnosis Day Story. Or submit your full Personal or Family PANS PANDAS Story.
Gabriella True
