ASPIRE Blog

Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is […]

Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s […]

Susan Swedo, MD and Gabriella True of ASPIRE – Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS PANDAS

Ng QX, Lim YL, Loke W, Yeo WS, Chee KT. Obsessive-Compulsive Disorders and Functional Urinary Disorders: A Fortuitous Association? Behavioral Sciences. 2021; 11(6):89. DOI: 10.3390/bs11060089 Patients with OC symptoms appeared […]

PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications.   This Medication Log […]

Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address) […]

Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results, […]

Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and […]

So, I noticed Sam posting about Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD), and PANS PANDAS (PP) on Instagram a few months ago. And my first thought was – oooh […]

Giggle Magazine article on PANDAS.   Page 23-24 of their June/July 2021 issue is available online.  

Kozak S, Kaminiów K, Kozak K, Paprocka J. Lyme Neuroborreliosis in Children. Brain Sci. 2021 Jun 7;11(6):758. doi: 10.3390/brainsci11060758. PMID: 34200467; PMCID: PMC8226969. Lyme neuroborreliosis (LNB) occurs when Borrelia burgdorferi […]

PANS/PANDAS is not the same as traditional OCD or a tic disorder; the onset and concurrent symptoms and, in some cases, the severity of the OCD set these disorders apart. […]