“You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with PANS/PANDAS, because you have either indicated to us at the Pediatric Neuropsychiatry and Immunology Clinic at MGH that you are interested in participating in research or you have found our survey online.
The purpose of this study is to examine how the pandemic has impacted children with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) or Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS).
It is a survey consisting of roughly 200-400 questions depending on your responses that should take about 40-60 minutes to complete. We are asking you to participate so as to shed further light on the effects of the pandemic on this acute-onset illness. We anticipate around 1000 people will take part in this study.”