Attention Parents and Guardians of children with PANS/PANDAS!
The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians of children with PANS/ PANDAS. If you have a child between the ages of 5-21, please consider taking this 20-minute online survey. Results can help to pave the way for improved programming and support for families.
- For more information about the study and enrollment, see the linked flyer.
- To access the survey and consent form, please click this link.
Please share with other families of children with PANS/PANDAS.
Enrollment Dates: Now until April 1, 2022
Enrollment Eligibility: Parent or guardian of a child (or children) between the ages of 5-21 who have been diagnosed with PANS or PANDAS by a healthcare provider.
- Over 18 years old
- Have one or more children diagnosed with PANS/PANDAS by a healthcare provider
- Able to read and write in English
- Have stable internet to complete and submit an online survey
Study Focus: Caregiver health, stress, and parent-child relationships among parents and guardians of children with PANS/PANDAS
Participation Involve: Completing an online survey, which will take about 20 minutes to complete on one child and about 10 minutes on any additional children.
Location: This survey can be completed in any location with internet access.
Note: Participants will not be compensated
Sponsor: This study is being conducted by Occupational Therapy Graduate Students from the University at Buffalo under the direction of Janice Tona, PhD, OTR/L.
If you have questions, please contact Dr. Janice Tona, Ph.D., OTR.
- Call – 716-829-6741