Enroll Today – Experience of Caregivers of Children with PANS/PANDAS

Attention Parents and Guardians of children with PANS/PANDAS!

The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians of children with PANS/ PANDAS. If you have a child between the ages of 5-21, please consider taking this 20-minute online survey. Results can help to pave the way for improved programming and support for families.  

  • For more information about the study and enrollment, see the linked flyer.
  • To access the survey and consent form, please click this link.

Please share with other families of children with PANS/PANDAS.  

Study Information

Enrollment Dates: Now until April 1, 2022 

Enrollment Eligibility: Parent or guardian of a child (or children) between the ages of 5-21 who have been diagnosed with PANS or PANDAS by a healthcare provider.

  • Over 18 years old
  • Have one or more children diagnosed with PANS/PANDAS by a healthcare provider
  • Able to read and write in English
  • Have stable internet to complete and submit an online survey

Study Focus: Caregiver health, stress, and parent-child relationships among parents and guardians of children with PANS/PANDAS

Participation Involve: Completing an online survey, which will take about 20 minutes to complete on one child and about 10 minutes on any additional children.

Location: This survey can be completed in any location with internet access.

Note: Participants will not be compensated

Sponsor: This study is being conducted by Occupational Therapy Graduate Students from the University at Buffalo under the direction of Janice Tona, PhD, OTR/L.

If you have questions, please contact Dr. Janice Tona, Ph.D., OTR.

  • Email
  • Call – 716-829-6741

To access the survey and consent form, please click this link.

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