Somewhere in There: Families Living with PANS & PANDAS Share Their Journeys from Despair to Hope by Melissa Nolan
“Throughout this book, parents of kids with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep) and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) share their answers to these questions and more. In stories of heartbreak and healing, they describe how the symptoms of these disorders really look behind closed doors and how relentlessly fighting for the right diagnosis and treatment led their kids to heal, slowly. They describe what it’s like now to watch their children take part in and enjoy life’s smallest and biggest joys, and the lessons they’ve learned along the way. Through words and art, kids themselves explain how it feels when you can’t control your body or mind, and share their messages of encouragement to others. The stories in this book are dedicated to the countless kids still suffering, and to the parents who cling to the reminders that their child is still in there, somewhere.”