ASPIRE Blog

You are your child’s best advocate, and we are here to help! The 504 and IEP planning process may seem overwhelming, but these educational sections will help you navigate the […]

Read Getting Started with 504 & IEP Plans first. Many PANS PANDAS kids will qualify for a 504 plan. A 504 plan will provide accommodations for the educational program within […]

Read Getting Started with 504 & IEP Plans first. Special Education is provided through the Individualized Education Program (IEP) for a student with a qualifying disability. The primary purpose of […]

How to Ask for an Evaluation  Written Request – Put all requests and correspondence in writing. Ask for an evaluation and explain why Provide medical documentation of diagnosis and supporting […]

Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is […]

Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s […]

Susan Swedo, MD and Gabriella True of ASPIRE – Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS PANDAS

Ng QX, Lim YL, Loke W, Yeo WS, Chee KT. Obsessive-Compulsive Disorders and Functional Urinary Disorders: A Fortuitous Association? Behavioral Sciences. 2021; 11(6):89. DOI: 10.3390/bs11060089 Patients with OC symptoms appeared […]

PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications.   This Medication Log […]

Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address) […]

Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results, […]

Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and […]