Rhode Island Call to Action – Insurance Coverage for PANS PANDAS

Rhode Island Update & New Call To Action

Update! June 9th, 2021

The Senate Amendment Bill 064 passed the Senate!  Woohoo!!  But now we still need your help right now. It is not hard and does not take long so don’t worry if you have never contacted your state representatives before. 

The Rhode Island Senate passed a parallel bill (Amendment to Bill S 064: An Act Relating to Insurance to include the New Section: 27-18-85). The Senate and the House have to vote yes on their separate bills in order for it to move forward. So, we need the House to put their version of the bill on their schedule so they can vote on it. Otherwise, the bill can’t move forward.

Please Contact:

Call to Action Request:  Ask Representative Casey, Speaker Blazejewski, and Members of the House Health and Human Services Committee to support his bill HB 6209. Say you are a resident of Rhode Island; you can add your district information too. Then write a little bit about why your family or you yourself needs insurance coverage for PANS PANDAS.

For More Information on the HB6209: House Bill 6209 – Requires coverage for treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome, including, but not limited to, the use of intravenous immunoglobin therapy.

Brief Example of Letter to Representative Amore:

Dear Representative Casey, Speaker Blazejewski, and Members of the House Health and Human Services Committee,

Please support HB6209 and have it placed on the schedule for a vote. We are excited that Senate passed Bill 646 SUB A: An Act Relating to Insurance to include the New Section: 27-18-85. Now it is time for the House to pass HB6209.  We desperately need insurance coverage for PANS PANDAS in the state of Rhode Island.

Mention things like: I was not able to access care so treatment was delayed and symptoms got worse as a result. My child was no longer able to participate in school or x,y,z activity. It has impacted my child’s life because symptoms have caused x,y,z. My child should not have to suffer through a lifetime of mental health issues because my child was not able to access appropriate medical treatment due to a lack of insurance coverage.

Please vote Yes on HB6209

Signed,

 Name, Home Address. District X of Rhode Island

Rhode island pans pandas legislation aspire

 

 

 

 


Previous Updates – April 2021
Written Testimony for Senate Amendment to SB064

Submit written testimony in support of an Amendment to Bill S 064: An Act Relating to Insurance to include the New Section: 27-18-85 – Mandatory coverage for treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome.

Bill introduced by: Senators Lawson, Lombardo, Seveney, Quezada, Miller, Sosnowski, Cano, Pearson, Euer, and Burke

Email written testimony to: RI Legislature slegislation@rilegislature.gov

Link to Bill Amendment: http://webserver.rilin.state.ri.us/BillText/BillText21/SenateText21/S0646.pdf

 

ASPIRE Board and Professional Advisory Board Testimony Letters

In Support of Amendment to Bill S 064: An Act Relating to Insurance to include the New Section: 27-18-85 – Mandatory coverage for treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome.

 

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