Rare Disease Day 2021

ASPIRE is proud to be included as a friend of NORD’s Rare Disease Day efforts.

PANDAS, by its strictest criteria, is still considered to be rare. PANS includes a much broader range of triggers, etiologies, and disease mechanisms, which many feel encompasses a larger population and that, indeed, it is not rare but unfortunately rarely diagnoses. Find more about PANS/PANDAS at ASPIRE. The NIH’s Rare Disease website lists ASPIRE as a resource for PANS.

Whether you think PANS/PANDAS is a Rare Disease or actually just rarely diagnosed, it is a day to educate people about PANS/PANDAS. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Rare is many worldwide. Rare is strong every day. Rare is proud everywhere.

34. RDD SM Support Pledge (1080 x 1080px) STRAP

  • 300 million people living with a rare disease worldwide
  • Over 6000 different rare diseases
  • 72% of rare diseases are genetic
  • 70% of those genetic rare diseases start in childhood

ASPIRE is pleased to partner with NORD to raise awareness on Rare Disease Day, an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. More information on Rare Disease Day.


Leave a comment