On May 19, 2022, Oregon’s Health Evidence Review Committee voted to ADOPT the guidance put forth for IVIG Coverage for PANDAS/PANS. The Oregon HERC is the body responsible for determining what will be covered by Medicaid and what will not.
Please support SB 628, which will align commercial and individual insurers in Oregon with that for which the state provides for children on Medicaid.
NWPPN has secured endorsements received for the Oregon Senate Bill 628-ensuring parity in healthcare coverage for the sickest children with PANDAS/PANS who require treatment with IVIG (aligning with State of Oregon Medicaid coverage).
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Oregon Nurses Association
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Disability Rights Oregon
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Our Children Oregon
Call To Action
Insurance denials and delayed medical care for children suffering from PANDAS/PANS should not be acceptable. ALL insurers in our state should be held responsible for ensuring medical treatment for children’s healthcare is provided. It is time to ensure there is equality in who can access medical treatment beyond those on Medicaid and those who can afford to pay privately. Working families who are battling this disorder and fighting to get their child back need ALL legislators to stand up in support of SB 628 so that their child, too, has a chance for healing.
This is the week to be very busy in Oregon. Please follow NWPPN for all the work they are doing and for current call to action items. So if you live in Oregon please participate and even if you live in another state, especially surrounding states, as the legislators in those states are observing the work in Oregon.
Legislative Hearing Date: Wednesday, February 8th, 1-3 pm PST.
Call to Action #1
Submit public testimony in support of SB628 via the Oregon Legislature website: Submit Testimony. Make sure to choose the date 2/8 and the bill SB 628 and Support.
Call to Action #2
Call the two Senators who have yet to pledge their support on this bill. You can call and leave a message after hours.
- Senator Hayden 503-986-1706
- Senator Bonham 503-986-1726
Visit www.nwppn.org/legislation for scrips to follow.
Call to Action #3
Support the community by attending public hearing either in person or virtually. View virtually on Oregon’s legislative website.
SB628
Requires health benefit plan and health care service contract coverage of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome.
- Chief Sponsor: Senator Lieber
- Regular Sponsors: Senator Campos, Patterson, Sollman, Representative Cate, Grayber, Helm, Hudson (Presession filed.)
Referred to: Senate Committee On Health Care
Proposed Bill: Read Proposed Bill SB628
Look up Bills Status: SB628
Previous Legislative Action
Health Evidence Review Commission (HERC) Coverage Guidance: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)
On May 19, 2022, Oregon’s Health Evidence Review Committee voted to ADOPT the guidance put forth for IVIG Coverage for PANDAS/PANS! It is anticipated to go into effect 1/1/2023. The Oregon HERC is the body responsible for determining what will be covered by Medicaid and what will not.
Oregon Herc Coverage Guidance for PANS & PANDAS – Overview
ASPIRE Board and Professional Advisory Board Testimony Letters:
Gabriella True
