SB628 Passed!
On May 29, 2023, Oregon’s Senate Bill 628 for IVIG Coverage for PANDAS/PANS passed in the House. Previously, on May 19, 2022, Oregon’s Health Evidence Review Committee voted to ADOPT the guidance put forth for IVIG Coverage for PANDAS/PANS. The Oregon HERC is the body responsible for determining what will be covered by Medicaid and what will not.
Previous Call To Action
Insurance denials and delayed medical care for children suffering from PANDAS/PANS should not be acceptable. ALL insurers in our state should be held responsible for ensuring medical treatment for children’s healthcare is provided. It is time to ensure there is equality in who can access medical treatment beyond those on Medicaid and those who can afford to pay privately. Working families who are battling this disorder and fighting to get their child back need ALL legislators to stand up in support of SB 628 so that their child, too, has a chance for healing.
Please follow NWPPN for all the work they are doing and for the current call-to-action items. So if you live in Oregon, please participate, and even if you live in another state, especially surrounding states, the legislators in those states are observing the work in Oregon.
Call to Action #1
Pleases submit public testimony in support of SB628 via the Oregon Legislature website. This is the last hurdle to getting the bill passed. You do not need to live in Oregon to submit testimony. We need letters of support from YOU, YOUR FAMILY, YOUR NEIGHBORS, FRIENDS, ETC!
Submit Testimony: Link – Make sure to click the correct hearing date and time
Public Hearing – April 24th at 3 p.m. in the House’s Behavioral Health and Healthcare Committee.
ASPIRE Board and Professional Advisory Board Testimony Letters:
SB628
Requires health benefit plan and health care service contract coverage of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome.
- Chief Sponsor: Senator Lieber
- Regular Sponsors: Senator Campos, Patterson, Sollman, Representative Cate, Grayber, Helm, Hudson (Presession filed.)
Referred to: Senate Committee On Health Care
Proposed Bill: Read Proposed Bill SB628
Look up Bills Status: SB628
House Committee On Behavioral Health and Health Care: Committee List
Previous Legislative Action
Health Evidence Review Commission (HERC) Coverage Guidance: Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)
On May 19, 2022, Oregon’s Health Evidence Review Committee voted to ADOPT the guidance put forth for IVIG Coverage for PANDAS/PANS! It is anticipated to go into effect 1/1/2023. The Oregon HERC is the body responsible for determining what will be covered by Medicaid and what will not.
Oregon Herc Coverage Guidance for PANS & PANDAS – Overview
ASPIRE Board and Professional Advisory Board Testimony Letters:
Gabriella True
