Missouri Legislative Action is lead by Annie Steil at Missouri PANS/PANDAS Coalition (Facebook and Instagram). Please contact her directly to become involved in legislative advocacy in Missouri.
Please see below for Bill information and Call to Action items.
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General Legislative Information
- Legislative Recap – PANS PANDAS Legislation Nationwide
- How Get Started: How to talk to your state representative
- Look Up Your State Representative & State Senator in your district
- ASPIRE Legislative Action Toolkit: Information for Legislators Toolkit
- Legislative Talking Tips
- Legislative Writing Points & Examples: Testimony & Short Form Emails
Current Legislative Efforts
SB 1263 – Establishes “Colton’s Law” relating to certain pediatric disorders
Bill Status:
- SB1263 – Establishes “Colton’s Law” relating to certain pediatric disorders
- Prefiled: 12/1/2025
Bill Language: PDF
Current Bill Summary: SB 1263 – This act establishes “Colton’s Law.” Under this act, MO HealthNet and private health insurance carriers and health benefit plans for plans delivered, issued for delivery, continued, or renewed on or after January 1, 2027, shall provide coverage for medically necessary physician-prescribed treatment for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) and pediatric acute-onset neuropsychiatric syndrome (PANS). Coverage shall include antibiotics, medications, behavioral therapies, immunomodulating medicines, plasma exchange, and intravenous immunoglobulin therapy, to the extent described in the act and subject to no greater copayments, coinsurance, or deductibles than similar benefits provided by the health carrier or benefit plan.
Sponsor: Brattin
Current Call to Action Items
Missouri PANS PANDAS Coalition (MPPC) needs you to get involved today!
Progress is being made in Missouri but real change happens when legislators hear directly from the families they represent. You don’t need to be an expert in policy or medicine. Legislators speak with constituents every day, and they expect to hear from families about issues affecting their health and access to care. Your lived experience is powerful. Sharing your story helps lawmakers understand what PANS/PANDAS looks like in real life and why action is needed. We’ll guide you every step of the way, and participation is always at your comfort level.
** CTA 1 – Missouri CONTACT Form
Fill out the form. While MPPC will announce CTAs on social media, we must be able to reach people more quickly & consistently! https://aspire.care/uncategorized/missouri-pans-pandas-contact-form/
** CTA 2 – MEET With Your SENATORS lease contact your senator’s office to request an in-person or virtual meeting. Tell your story. Ask them to support SB 1263 and how the lack of insurance based care has financially, physically, emotionally impacted the patient and the family. We want legislators to digest the need and demand for Colton’s Law. Focus on key points as outlined in ASPIRE talking/writing points. https://aspire.care/blog/legislative-talking-writing-points/
** CTA 3
Once the bill is assigned to a committee, we will reach out again. We will need all hands on deck again. This is a marathon, not a sprint.
Missouri Press
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
Previous Legislative Updates
HB 1365
Sponosred By: Cook, Bennie (143)
Bill Status: HB 1365
Bill Information: HB 1365:
Healthcare Reform Committee: Link to Members
Subject to appropriations and the limitations of section 376.1227 and as permitted by federal law, services for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome, including the use of intravenous immunoglobulin therapy, if pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome are coded for billing and diagnosis purposes in accordance with section 376.1227;
ASPIRE Board and Professional Advisory Board Testimony Letters:
Return to ASPIRE Legislative Resources
Gabriella True
