Missouri Legislative Action is lead by Annie Steil at Missouri PANS/PANDAS Coalition. Please contact her directly to become involved in legislative advocacy in Missouri.
Please see below for Bill information and Call to Action items.
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General Legislative Information
- Legislative Recap – PANS PANDAS Legislation Nationwide
- How Get Started: How to talk to your state representative
- Look Up Your State Representative & State Senator in your district
- ASPIRE Legislative Action Toolkit: Information for Legislators Toolkit
- Legislative Talking Tips
- Legislative Writing Points & Examples: Testimony & Short Form Emails
Current Legislative Efforts
SB 1263 – Establishes “Colton’s Law” relating to certain pediatric disorders
Bill Status:
- SB1263 – Establishes “Colton’s Law” relating to certain pediatric disorders
- Prefiled: 12/1/2025
Bill Language: PDF
Current Bill Summary: SB 1263 – This act establishes “Colton’s Law.” Under this act, MO HealthNet and private health insurance carriers and health benefit plans for plans delivered, issued for delivery, continued, or renewed on or after January 1, 2027, shall provide coverage for medically necessary physician-prescribed treatment for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) and pediatric acute-onset neuropsychiatric syndrome (PANS). Coverage shall include antibiotics, medications, behavioral therapies, immunomodulating medicines, plasma exchange, and intravenous immunoglobulin therapy, to the extent described in the act and subject to no greater copayments, coinsurance, or deductibles than similar benefits provided by the health carrier or benefit plan.
Sponsor: Brattin
Current Call to Action Items
Please stay tuned!
Missouri Press
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
Previous Legislative Updates
HB 1365
Sponosred By: Cook, Bennie (143)
Bill Status: HB 1365
Bill Information: HB 1365:
Healthcare Reform Committee: Link to Members
Subject to appropriations and the limitations of section 376.1227 and as permitted by federal law, services for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome, including the use of intravenous immunoglobulin therapy, if pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute onset neuropsychiatric syndrome are coded for billing and diagnosis purposes in accordance with section 376.1227;
ASPIRE Board and Professional Advisory Board Testimony Letters:
Return to ASPIRE Legislative Resources
Gabriella True
