You are being invited to participate in a research study of the University of Connecticut, called Experiences of Families Affected by PANS/PANDAS Around the World.Patients and parents of patients are invited to participate. The purpose of this study is to examine the experiences of families accessing adequate care, following the recommendations by clinicians, and getting their children (or themselves) healthy. It is a survey consisting of 67 questions that should take about 30-60 minutes to complete. We are asking you to participate so as to shed further light on the health care challenges faced by PANS/PANDAS children, adults, and families. We anticipate around 1000 people will take part in this study. Patients and parents of patients are invited to participate.
Gabriella True
