ASPIRE is thrilled to announce that Children’s Autoimmune Brain Disorder Association (CABDA) will merge with us. We look forward to working together with a shared vision to achieve our mission. Let’s move mountains!
Please read CABDA’s full announcement.
Children’s Autoimmune Brain Disorder Association (CABDA) was launched in 2017 with a mission to improve the quality of life for children with autoimmune brain disorders through education, research and awareness. In that time, CABDA has distributed print material, organized meetings with stakeholders, educated through social media outreach, collaborated with other non-profit organizations and exhibited at both national and state conferences. CABDA informed over 4000 pediatric physicians, countless allied healthcare providers, educators, caregivers and individuals in the community about autoimmune brain disorders and its impact on children and families in the state of Texas. Our statewide advocacy, in coordination with parent groups and the efforts of key stakeholders, led to a law establishing a Texas PANS Advisory Council by the Texas legislature.
We are very grateful to our donors and individuals in our community who have been champions for children and supported us. Special thanks to all our past and present board members for your contribution of time and skills and other organizations that partnered with us: HESA and The Amobi Okoye Foundation—thank you!
With the start of the new year, we believe the best way forward in continuing our mission and more efficiently using our resources is in merging with the national non-profit, ASPIRE, the Alliance To Solve PANS and Immune-Related Encephalopathies. With an executive board composed of regional community leaders and a professional advisory board with leading researchers and clinicians, including Dr. Susan Swedo, Scientist Emerita at the National Institutes of Health, ASPIRE can effectively advocate for children and their families to advance knowledge of PANS/PANDAS. With a shared vision and consolidation of resources, CABDA’s mission will continue as we join ASPIRE. Our website and social media accounts will remain up until March 15. Thank you again for your continued support. Please follow ASPIRE on Facebook, Instagram and Twitter. ASPIRE’s website is www.aspire.care. #autoimmuneencephalopathy #panspandas
Gabriella True
