Study Participants Needed in CT and Surrounding States

Connecticut Families and Patients – Attention – Participants needed for Study. See Detail below. Questions should be directed to the researchers listed below. If you would like a pdf of this flier, feel free to PM us with your email and we can send it to you.

University of Connecticut – Parents/Caregivers Wanted for a Research Study: Families’ Experiences with PANS

Several interviews have been completed; however, the study is seeking families with household incomes less than $50,000 (or close to that) for participation. One of the goals of the project is to gain a better understanding of how accessing diagnosis and treatment may vary based on families’ resources.

We will be conducting interviews with parents/caregivers of children who have been treated for PANS/PANDAS. The questions will focus on the steps taken to get a diagnosis and treatment, challenges and barriers encountered, impacts of PANS/PANDAS on the family, impacts on children’s development and any help received (or not) from schools, healthcare providers, and other support services.

Each family will receive $75 as a thank you for their time and participation.

The interviews are confidential and information will be provided about procedures for ensuring confidentiality for all study participants. Interviews will take place in locations convenient for families and can be conducted in English or Spanish.

To learn more about this research please contact Dr. Maria LaRusso at 617-470-0321 or  or Dr. César Abadía-Barrero at 617-999-3612.

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