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Posts by:
Gabriella True

A Boy, His Brain, and a Decades-Long Medical Controversy
March 25, 2021
A Boy, His Brain, and a Decades-Long Medical Controversy

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was...

Read More


Category:  Blog, News
IVIG Care Packages for PANS PANDAS
March 22, 2021
IVIG Care Packages for PANS PANDAS

I’m sending out gift bags to other kids because I want to help make their experience during IVIg day a little better. If you know of someone getting IVIg, please contact me so that I can send them...

Read More


Category:  Blog, Featured on Homepage
Tags:  IVIG
Finding the Right Fit at School for PANS PANDAS
Finding the Right Fit at School for PANS PANDAS

I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant...

Read Story

Weaving together a partial in-school and homebound instruction
Weaving together a partial in-school and homebound instruction

Read about one family's journey of how they handled their daughter's inability to attend in-person school full time and ultimately weaving together a partial in-school and homebound instruction...

Read Story

Anxiety in PANS PANDAS
March 20, 2021
Anxiety in PANS PANDAS

Anxiety is a major symptom of PANS and PANDAS.    See more about the PANS PANDAS Diagnostic Criteria and Symptoms.   Generalized Anxiety, particularly Separation Anxiety, a hallmark...

Read More


Category:  Blog, Family Resources, Symptoms
Seeking Stories about Siblings & PANS PANDAS
March 20, 2021
Seeking Stories about Siblings & PANS PANDAS

Share your PANS PANDAS story about how siblings are affected...

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Category:  Blog, Featured on Homepage
Tags:  Personal Story, Siblings
Sleep Awareness Week – PANS PANDAS
March 20, 2021
Sleep Awareness Week – PANS PANDAS

Chances are if you have PANS PANDAS, you have experienced issues with sleeping. Learn about reasons why this symptom is part of the Diagnostic Criteria.  Come learn about why Sleep...

Read More


Category:  Blog, Featured on Homepage
Tags:  Sleep Disturbances
Sleep Disturbances in PANS PANDAS
March 20, 2021
Sleep Disturbances in PANS PANDAS

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep...

Read More


Category:  Blog, Family Resources, Featured on Homepage, Symptoms
Tags:  REM, Sleep Disturbances
ADHD & PANS PANDAS
March 20, 2021
ADHD & PANS PANDAS

A new onset of ADHD-like behaviors along with other PANS symptoms is one of the possible signs someone may have PANS...

Read More


Category:  Blog, Family Resources, Featured on Homepage, Symptoms
Tags:  ADHD
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH
March 18, 2021
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH

You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with...

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Category:  Blog, Current Studies, Featured on Homepage
Illinois PANS PANDAS Updates
March 14, 2021
Illinois PANS PANDAS Updates

Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...

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Category:  Legislative Resources
Tags:  Legislation
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research
March 5, 2021
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research

MGH is looking for healthy controls to complete a single MRI and some brief psychological assessments to study Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep...

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Category:  Current Studies
Tags:  MRI, Neuroimaging
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