Please follow this page and ASPIRE’s social media for updates – Facebook and Instagram. Please email Debbie Nelson with questions regarding West Virginia legislative efforts and ways you can get involved beyond the Calls to Action.
General Legislative Information
- How to talk to your state representative
- Find your State Representative and State Senator in your district
- ASPIRE Legislative Action: Information for Legislators Toolkit
- Legislative Talking/Writing Points and Examples
- Visit Section Today!
- What to Include in Testimony Letters and Talking Points
- Impact Statement Examples
- About PANS/PANDAS Examples
- Short Form Support Emails
- Visit Section Today!
2025 Legislation
SB 297 – Requiring coverage for certain pediatric autoimmune neuropsychiatric disorders in certain circumstances
West Virginia SB297: Bill Status
West Virginia SB297: Bill Language
Lead Sponsor: Rucker
Committee: Committee on Health and Human Resources
Call to Action
🔴 West Virginia: Take Action for SB 297! 🔴
SB 297 would require insurance coverage for pediatric autoimmune neuropsychiatric disorders like PANS/PANDAS—but it won’t move forward unless the House Health & Human Resources Committee puts it on the agenda.
📢 We need YOUR voice! Call and email the Health Chair today and ask them to put SB 297 on the agenda.
✍️ Share Your Personal Impact Statement – Tell YOUR STORY about how PANS/PANDAS has impacted your child’s and your family’s life. Explain why this bill matters and why it must be heard.
📌 Address your letters to:
Dear Delegate Worrell and Committee on Health and Human Resources
⏳ Due Date: ASAP
📞 Find contact info here: https://www.wvlegislature.gov/committees/house/HouseCommittee.cfm?Chart=hhr
📝 Read ASPIRE’s Talking/Writing Tips: https://aspire.care/blog/legislative-talking-writing-points/
West Virginia families need access to critical care—urge lawmakers to act now! #PANS #PANDAS #WVLegislation
ASPIRE Letters of Support
- ASPIRE Board Support for: SB297 West Virginia
- ASPIRE Professional Advisory Support for: SB297 West Virginia
Support West Virginia Legislation
- Call and email the Health Chair to ask to put SB297 bill on the agenda.
- Share your Personal Impact Statement – Tell YOUR STORY about how PANS/PANDAS has impacted your child’s and your family’s life and why you want the bill to be put on the agenda.
- Please read ASPIRE’s Talking/Writing Tips
- Address letters: Dear Delegate Worrell and Committee on Health and Human Resources
- Due Date: ASAP
Call to Action – further details
- Call and email the Chair, Vice Chair, and Members of the Senate Health and Human Resources Committee. You can also contact the entire committee. If your state representative or state senator is on this committee, it is important to let them know you are their constituent.
- Call or Email your District Legislators. Even if they are not on the committee, please also call your state representative and state senator and ask them to support this bill
- Email your Personal Impact Statement and ask for a hearing to the Chair, Vice Chair, and members of the Senate Health and Human Resources Committee, and cc your district legislators. See here for Talking Points.
- Enlist Help! ask everyone you know in West Virginia if they will send their district legislators and committee members a short note requesting support for Bill #. Include Friends, Family, Teachers, Doctors, Therapists, etc. See here for examples of Short Form Support Emails.
Past Bills
SB 236
Bill Information: Senate Bill 236 – Coverage for treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome and other autoimmune encephalopathies.
Bill Status: SB236
Requiring coverage of treatment for certain pediatric autoimmune neuropsychiatric disorders in certain circumstances
ASPIRE Letters of Support
- ASPIRE Board Support for: SB236 West Virginia
- ASPIRE Professional Advisory Support for: SB236 West Virginia
SB 45
Bill Information: Senate Bill No. 45 – Coverage for treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections and pediatric acute-onset neuropsychiatric syndrome and other autoimmune encephalopathies.
Bill Status: SB45
Bill Text: Current Bill Language
First Reader Summary: A BILL to be entitled an Act to amend Part 1 of Article 1 of Chapter 18 of Title 45 of the Official Code of Georgia Annotated, relating to the state employees’ health insurance plan, so as to provide for a three-year pilot program to provide coverage for the diagnosis and treatment of pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection (PANDAS) and pediatric acute onset neuropsychiatric syndrome (PANS) under the state health benefit plan; to provide for agreements; to provide for an annual report; to provide for related matters; to provide for automatic repeal; to repeal conflicting laws; and for other purposes.
Referred to: Senate Health and Human Resources
HB 2965
HB 2965: Link
HB2965: Requiring PEIA, Medicaid and other health insurance providers to cover treatment of pediatric autoimmune neuropsychiatric disorders.
- HB2965 – Aspire Professional Advisory Board Letter
- HB2965 – ASPIRE Board of Directors Support Letter
- HB2252 – Aspire Professional Advisory Board Letter
- HB2252 – ASPIRE Board of Directors Support Letter
Gabriella True
