Self Care With PANS/PANDAS Living with PANS/PANDAS or similar neuroimmune conditions can touch almost every part of your life. Symptoms might affect your mental health, school, work, relationships,...
A Conversation about the unhide® Platform I’m excited to share a recent conversation with Breanne Failor, Director of Strategic Partnerships at the Brain Inflammation Collaborative (BIC)....
If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme...
This article is for kids and teens living with PANS/PANDAS. It explains the conditions, what symptoms might look like, what you need, what’s okay to feel, and reminders that you’re not alone....
This article is for kids and teens who don’t have PANS/PANDAS themselves, but have a friend or sibling who does. It explains the conditions, what symptoms might look like, and how you can support...
Bullying & PANS/PANDAS Bullying is a frequent concern within the PANS/PANDAS community. Bullying is never the child’s fault. When symptoms are misunderstood, children may be labeled as...
At ASPIRE, the Alliance to Solve PANS & Immune-Related Encephalopathies, we support families facing PANS/PANDAS throughout every stage of life. This holiday guide shares the practical strategies...
College with PANS/PANDAS: Your Story Matters Starting college can be challenging for any young adult. For students living with PANS/PANDAS, the transition often comes with added layers—managing...
Starting college is an exciting milestone, but for students with PANS/PANDAS, the transition can feel especially overwhelming. Balancing academics, health needs, and independence requires careful...
I want to thank our entire community for participating in PANS PANDAS Awareness Day yesterday. Your posts, lights, and conversations made a powerful impact. Today is World Mental Health Day,...
By Gabriella True, President, Alliance to Solve PANS & Immune-Related Encephalopathies (ASPIRE) Each year, countless children and adults with PANS PANDAS lose critical time, time when early...
Learn more about PANS PANDAS PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven...
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]