June 3, 2024
Colorado PANS PANDAS Updates
General Legislative Information Legislative Recap – PANS PANDAS Legislation Nationwide How Get Started: How to talk to your state representative Look Up Your State Representative...
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Legislation
January 31, 2024
New York PANS PANDAS Updates
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
April 7, 2023
Oregon PANS PANDAS Updates
Please support NWPPN’s lead to mandate insurance coverage for PANS...
July 2, 2022
Rhode Island PANS PANDAS Updates
General Legislative Information Legislative Recap – PANS PANDAS Legislation Nationwide How Get Started: How to talk to your state representative Look Up Your State Representative & State...
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 14, 2021
Illinois PANS PANDAS Updates
Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...
March 3, 2021
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS
DES MOINES, Iowa – This week brings one of the first significant deadlines at the Iowa statehouse. However, for some Iowa families dealing with a rare disease, one bill could bring hope. Parents...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...
June 4, 2020
ASPIRE Series on COVID-19
In response to the COVID-19, a global pandemic, that has affected all of our lives, ASPIRE is putting together a series of Q&As from a variety of professionals. We will be updating this resource...
April 14, 2020
PANS Advisory Council in Texas
Governor Abbott Appoints Fourteen To Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council Governor Greg Abbott has appointed Lisa Hardy, ASPIRE Board member along...
March 26, 2020
Co-Signs Letter Regarding “Buy American” Requirements on Medicines
New “Buy American” requirements on medicines would limit patient access to affordable medicines and increase the risk of drug shortages during the COVID-19...