August 12, 2025
Joint Rebutttal Statement to the AAP
Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...
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July 30, 2025
Nebraska PANS PANDAS Awareness
🌿 In May, during Mental Health Awareness Month, our Nebraska State Leads—Grace Troupe and Elizabeth Fandl—joined Where There’s a Will Foundation for their annual mental health awareness walk...
May 8, 2025
New York/Connecticut ChitChat Meet Up
In-Person - Danbury, CT - Thursday, June 12 - 10:00am-12:00pm...
Haylie’s Healing Journey: A Story of Strength and Resilience
The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...
April 17, 2025
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
April 16, 2025
Nutrition for PANS & PANDAS
Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs)...
March 20, 2025
Seizures Linked to Bartonella and Babesia
Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State...
March 10, 2025
The Sibling Experience in PANS/PANDAS: Understanding the Challenges & Needs
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
March 10, 2025
Accommodations and Educational Supports for PANS PANDAS by Nancy O’Hara, MD
Supporting Students with PANS, PANDAS, and Basal Ganglia Encephalitis: Children with PANS, PANDAS, and basal ganglia encephalitis often require specific school accommodations to support their...
March 8, 2025
Managing Needle Fear: Practical Tips for Blood Draws & Infusions
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
March 8, 2025
Hydration & IVIG: Why It Matters
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...