Share Your Triumphs From the Past Year!
Share Your Triumphs: Celebrating Wins in the PANS/PANDAS Journey We all know that living with PANS/PANDAS is an uphill battle—sometimes a mountain climb. But as we approach the...
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November 21, 2024
Texas PANS PANDAS Updates
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
October 7, 2024
IOCDF Town Hall on PANS PANDAS
🌟 Join IOCDF for a Special PANS PANDAS Town Hall! 🌟 As part of PANS PANDAS Awareness Week, the IOCDF is hosting an incredible Town Hall featuring three inspiring voices:...
October 2, 2024
The Cost of Inaction –
What is the cost of not treating PANS/ PANDAS promptly & appropriately? We recently sat down with Susan Swedo, MD, to discuss a critical topic: the cost of inaction when...
September 19, 2024
The Inflammation Factor
Therapists need to be aware of when inflammatory disorders can masquerade as psychiatric conditions Therapy Today – September, 2024 – Lucy McDonald is a counselor at the Children’s...
Never Ever Give Up: Jacqueline Lembesis’ PANDAS Story
The battle with PANDAS is no joke, but there is hope. Throughout my journey, my mantra has been Never Ever Give Up. I am a fighter, a warrior, like all those with PANS/PANDAS. I have found fun ways...
Elise’s Story: PANS/PANDAS treatment after a 15+ year diagnostic delay
Elise shared the story below on her PANS/PANDAS journey at the IOCDF Conference in 2024 as part of the panel “PANS & PANDAS: What is it, What to Look For,...
August 31, 2024
Lyla and Pickles’ Guide to PANDAS
Lyla is a spunky eight-year-old little girl with a wild imagination. Along with her best friend, Pickles, Lyla loves to go on adventures, play pretend, and enjoy being a kid. When Lyla was six years...
Understanding PANS PANDAS: Insights from Those Who Live It
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
PANS PANDAS Triumphs!
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...
July 22, 2024
World Brain Day 2024
World Brain Day 2024 (WBD 2024), Monday, July 22, is dedicated to Brain Health and Prevention. World Brain Day must include a discussion on PANS/PANDAS. Help us by empowering individuals,...