If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme...
Arthritis in Children with Psychiatric Deterioration: What This Case Series Shows Ma M, Sandberg J, Farhadian B, Silverman M, Xie Y, Thienemann M, Frankovich J. Arthritis in Children with Psychiatric...
A Chat About Legislative Advocacy Gabriella: Before we start, I want to make it clear who this is for. This isn’t meant for professional advocates or trained lobbyists. It’s for...
When PANS and IBD Co-Occur: What This Case Series Suggests Tang AW, Swedo SE, Pasternack M, Murphy T, et al. Eight cases of pediatric acute-onset neuropsychiatric syndrome: clinical characteristics....
In this study, neurological soft signs (NSS) are defined as subtle neurological examination findings that may reflect dysfunction in motor coordination and movement regulation, particularly related...
2026 Pennsylvania PANS PANDAS Legislation For more information, please reach out to Pennsylvania State Leads Bonnie Markowitz and Kathy Rubel. See below for the Current Call to Action...
The Patient 360 Conference is a free, virtual event created just for patients, families, and caregivers. You’ll get expert-led sessions, real-world tools, and a supportive community to help you...
At ASPIRE, the Alliance to Solve PANS & Immune-Related Encephalopathies, we support families facing PANS/PANDAS throughout every stage of life. This holiday guide shares the practical strategies...
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
Lacy was an outgoing, fun nine-year-old. Then, one night, everything changed. She became a shell of herself. Her mother, Crystal, 30, from Illinois, told Newsweek she can only describe last year...
