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February 18, 2026
Center for Lyme Action Virtual Advocacy Day
Today, representing ASPIRE, I had the opportunity to join the Connecticut delegation for Legislative Day with the Center for Lyme Action. They are an incredible organization. They provide everything...
February 17, 2026
How two elementary school-aged girls became advocates for insurance reform in Nebraska
LINCOLN, Neb. (KOLN) — Violet and Belle Troupe are typical little girls. They go to elementary school, play outside on nice days and love to twirl around in their best...
February 10, 2026
Why Other Health Impairment (OHI) is the Appropriate IEP eligibility category for PANS/PANDAS
PANS/PANDAS Meets IDEA’s Definition of Other Health Impairment Students with PANS/PANDAS may experience sudden and severe symptoms that significantly disrupt school functioning across academic,...
February 9, 2026
Legislative Action: Information for Legislators Toolkit & Handouts
Legislative Action: Information for Legislators Toolkit & Handouts Download Legislative Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative...
February 9, 2026
Mandated Insurance Coverage for PANS and PANDAS
Mandated Insurance Coverage for PANS and PANDAS Providing Equal and Comparable Access to Medically Necessary Care Why Insurance Coverage Is Necessary The Cost of Inaction Is Higher Than the Cost...
February 7, 2026
When the People You Love Don’t Believe PANS Is Real
If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme...
February 7, 2026
Arthritis in Children with Psychiatric Deterioration: What This Case Series Shows
Arthritis in Children with Psychiatric Deterioration: What This Case Series Shows Ma M, Sandberg J, Farhadian B, Silverman M, Xie Y, Thienemann M, Frankovich J. Arthritis in Children with Psychiatric...
February 7, 2026
A Chat About Legislative Advocacy: Your Story Matters
A Chat About Legislative Advocacy Gabriella: Before we start, I want to make it clear who this is for. This isn’t meant for professional advocates or trained lobbyists. It’s for...
February 7, 2026
When PANS and IBD Co-Occur: What This Case Series Suggests
When PANS and IBD Co-Occur: What This Case Series Suggests Tang AW, Swedo SE, Pasternack M, Murphy T, et al. Eight cases of pediatric acute-onset neuropsychiatric syndrome: clinical characteristics....
February 7, 2026
Neurological Soft Signs in PANS
In this study, neurological soft signs (NSS) are defined as subtle neurological examination findings that may reflect dysfunction in motor coordination and movement regulation, particularly related...
February 5, 2026
Connecticut PANS PANDAS Updates
2026 Legislative Session Please check back for information for the 2026 Legislative Session. In the meantime, please fill out the Connecticut Contact Form. Please see below for Bill Information and...