February 15, 2022
Sibling Support
We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read...
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February 8, 2022
Enroll Today – Experience of Caregivers of Children with PANS/PANDAS
Attention Parents and Guardians of children with PANS/PANDAS! The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians...
February 7, 2022
Can OCD Be An Autoimmune Condition?
Examining possible root causes of Obsessive-Compulsive Disorder. Psychology Times by Odelya Gertel Kraybill Ph.D. Key points OCD can be rooted in immune response. OCD can be triggered by infections...
February 3, 2022
Doctoral Study – Perceptions of Factors in PANDAS remission
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection (PANDAS): A Qualitative Study of Parental Perceptions of Factors in Remission Doctoral Dissertation: Pediatric...
A PANS PANDAS Recovery Poem
8 years ago, I was diagnosed with Pandas 7 years ago, I wobbled on my feet 6 years ago, I moved forward with my life 5 years ago, I realized...
2021 PANS PANDAS Triumphs!
Thank you to everyone who took a moment to celebrate the successes of the past year so our community can carry hope into 2022! ...
Hold Onto Hope!
At the age of 8, my life, as it was, was taken in a week of sickness because of the flu. I woke up with hallucinations, severe OCD, and ADHD-like...
Being a teen with PANDAS and chronically ill is hard!
I think that people often forget about chronically ill teenagers. We aren't adults yet, but we also aren’t little kids anymore. We're in the middle of everything and everyone. We can understand...
December 10, 2021
Ben’s Cookie Fundraiser for PANS PANDAS!
Success! Ben’s cookie fundraiser was incredibly successful! Ben and his family combined a fundraiser with an awareness event. They took cookie preorders and sold cookies and beverages near...
December 9, 2021
PANS PANDAS Tri-Fold Brochure for Medical & Therapy Provider Offices
This trifold brochure briefly explains PANS PANDAS, families' next steps, where to get more help and ASPIRE...
December 8, 2021
Rhode Island Family Court Judicial Conference
Is It Mental Health or Medical? PANDAS/PANS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infection/Pediatric Acute-onset Neuropsychiatric Syndrome) The Family Court...
December 2, 2021
New Autism Rates Published – 1 in 44
CDC’s Autism Numbers The CDC has released the new estimated Autism Prevalence rates. They report that 1 in 44 or 2.27% of American 8-year-olds have an autism spectrum disorder (ASD)...