PANS PANDAS Siblings – Advocates of the Future
My goal in the future is to take what I have learned about PANDAS and to help spread awareness about the disorder so that others can better navigate their own experiences with children who have...
Blog
Sibling Story – Relationship improves as symptoms improve
My oldest child was diagnosed with PANDAS at 6 and a half years old after sudden onset. At the height of her symptoms, my youngest was turning 2. I noticed...
April 1, 2021
Childhood Post-Infectious Autoimmune Encephalopathy Clinic at U Arkansas
“The University of Arkansas for Medical Sciences-Arkansas Children’s Hospital (UAMS-ACH) Childhood Post-Infectious Autoimmune Encephalopathy (CPAE) clinic specializes in diagnosis and...
March 30, 2021
Healing Complex Children with Homeopathy
Provides detailed information on selecting remedies, choosing potencies, dosing, and case...
March 30, 2021
Comitato Italiano Genitori Webinar on PANS PANDAS
ASPIRE Board Members hosts Comitato Italiano Genitori in a discussion on PANS PANDAS Webinar: Wednesday, April 28th – 10:00am – 12:00pm EST Featuring ASPIRE Board Members: Susan Swedo, MD...
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 26, 2021
Treating the Aftermath of Infectious Disease
Amongst the speakers will be ASPIRE's Professional Advisory Board member, Nancy O’Hara, MD, MPH, FAAP, and her practice partner Lindsey Wells,...
Finding PANS PANDAS Treatment as an Adult
I am proud of my journey. It made me the person I am today. I still have a while until recovery, but my progress is enough to motivate me to keep...
March 25, 2021
A Boy, His Brain, and a Decades-Long Medical Controversy
Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was...
March 22, 2021
IVIG Care Packages for PANS PANDAS
I’m sending out gift bags to other kids because I want to help make their experience during IVIg day a little better. If you know of someone getting IVIg, please contact me so that I can send them...
Finding the Right Fit at School for PANS PANDAS
I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant...
Weaving together a partial in-school and homebound instruction
Read about one family's journey of how they handled their daughter's inability to attend in-person school full time and ultimately weaving together a partial in-school and homebound instruction...