Blog
Connecticut PANS PANDAS Updates
2026 Legislative Session Please check back for information for the 2026 Legislative Session. In the meantime, please fill out the Connecticut Contact Form. Please see below for Bill Information and...
New Jersey PANS PANDAS Updates
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
Ohio PANS PANDAS Updates
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
Girl, 9, Becomes Different Person Overnight, Mom Fights For Rare Diagnosis
Lacy was an outgoing, fun nine-year-old. Then, one night, everything changed. She became a shell of herself. Her mother, Crystal, 30, from Illinois, told Newsweek she can only describe last year...
Share Your College Experience with PANS/PANDAS
College with PANS/PANDAS: Your Story Matters Starting college can be challenging for any young adult. For students living with PANS/PANDAS, the transition often comes with added layers—managing...
Navigating College Accommodations for Students with PANS/PANDAS
Starting college is an exciting milestone, but for students with PANS/PANDAS, the transition can feel especially overwhelming. Balancing academics, health needs, and independence requires careful...
Missouri PANS PANDAS Updates
Missouri Legislative Action is lead by Annie Steil at Missouri PANS/PANDAS Coalition (Facebook and Instagram). Please contact her directly to become involved in legislative advocacy in Missouri. ...
Advancing Our Understanding of IVIg in Pediatric Acute-Onset Neuropsychiatric Syndrome. Journal of Mosaic of Autoimmunity
Danieli, M.G.; Buti, E.; Longhi, E.; et al. Advancing Our Understanding of IVIg in Pediatric Acute-Onset Neuropsychiatric Syndrome. Journal of Mosaic of Autoimmunity 2025, 1 (2), 5. doi.org/10.53941/jmai.2025.100012
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Reviews intravenous immunoglobulin (IVIg) as a pooled IgG product with broad immunomodulatory and anti-inflammatory effects.
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Describes mechanisms including modulation of Fcγ receptors, inhibition of complement activation, cytokine regulation, and control of pro-inflammatory immune cells.
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Explains that IVIg can influence both innate and adaptive immune systems, including via epigenetic mechanisms.
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Summarizes evidence indicating IVIg can attenuate neuropsychiatric symptoms and restore immune balance in children with PANS.
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Notes variability in randomized trial outcomes but highlights converging clinical and mechanistic support for IVIg in selected patients.
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Emphasizes the need for biomarker-guided studies to identify responders and optimize treatment strategies.
Pediatric acute-onset neuropsychiatric syndromes and the gut-oral-brain axis: a narrative review of emerging microbiome-immune interactions and therapeutic perspectives
Matera M, Biagioli V, Illiceto MT, Palazzi CM, Cavecchia I, Manzi A, Lugli S, Pennazzi L, Meocci M, Pedaci FA, Bertuccioli A. Pediatric acute-onset neuropsychiatric syndromes and the gut-oral-brain axis: a narrative review of emerging microbiome-immune interactions and therapeutic perspectives. Frontiers in Immunology. 2025;16. doi:10.3389/fimmu.2025.1726630
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Narrative review examining evidence linking gut and oral microbiota to immune dysregulation in PANS/PANDAS.Summarizes literature describing microbiome-related mechanisms including immune activation, increased intestinal permeability, and blood–brain barrier disruption.
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Discusses how microbial metabolites and inflammatory signaling may influence neuroinflammation and neuropsychiatric symptoms.