New York PANS PANDAS Updates

General Legislative Information

2025-2026 Legislative Session

Senate Bill S2655A: Relates to insurance coverage for pediatric acute-onset neuropsychiatric syndrome 

Bill Status: Senate Link

Assembly Bill A9659: Relates to insurance coverage for pediatric acute-onset neuropsychiatric syndrome 

Bill Status: Assembly Link

Previous New York PANS PANDAS Action Updates

Call to Action #1: Say AYE for both bills

Please visit the Senate and Assembly Bill Status links (see below). On each page, there is a small box that says, “do you support this bill?” click “AYE or NAY.” Please click AYE and fill in your personal information. You may include a brief note on why you would like your representative to support this legislation and have a hearing.

Call to Action #2: Asking for support and a hearing
Contact the Senate Insurance Committee members, Assembly Insurance Committee Members, and your District Representatives. Remember, there is a bill for the Senate and the Assembly.

• Ask Senators to support #S3038 and for a hearing to provide testimony – see below for links to committee members
• Ask Assemblymen to support #A2823 and for a hearing to provide testimony- see below for links to committee members
• Explain it’s for insurance for PANS/PANDAS coverage (medication, IVIG if needed)
  Other states have laws in place: AK, AR, DE, KS, ID, IL, MA, MD, MN, NH, OR, and RI.
  Benefits: Saving lives, saving state and insurance companies money if we treat early and effectively
• Briefly share your story/your need.
• Ask again to support the bill.

Written & Oral Testimony: Please follow the general guidelines below for written and oral testimony.

• Address your letter correctly – ex: Dear Senator X or Dear Assemblyman X
• Include your full name and address
• Remember, your testimony becomes part of the public record and is accessible via the ct.gov website. Please share relevant details that pertain to the bill but do not overshare personal information.
• Make sure you are asking legislators to support the appropriate bill
  • Senators to support #S3038
  • Assemblymen to support #A2823
• Tell your story. Stay focused. Be concise.
  • Do discuss matters relevant to this bill. For example: how not having mandated insurance coverage increased suffering by delaying or preventing treatment
    measurements you took to self-pay for treatments
    • how treatment of any kind, but especially IVIG, helped your child, your patient, your student, yourself, or your household, etc
    • how delayed treatment or the inability to treat affected your child, your patient, your household, etc
    • how delayed treatment or the inability to treat affected your child, your student’s performance at school, the need for a 504 plan or IEP, the need for homebound instruction, absenteeism, etc.
    • how PANS PANDAS symptoms impact your child’s and your daily life
    • how it affected your ability to practice medicine (for providers only)
  • Do not discuss
    • other medical issues not relevant to this bill (for example, standards of care for comorbid health issues, vaccines, etc.)
    • personal issues that do not pertain to this bill

Return to ASPIRE Legislative Resources

Gabriella True