January 4, 2026
Iowa PANS PANDAS Updates
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
January 4, 2026
Bullying & PANS/PANDAS
Bullying & PANS/PANDAS Bullying is a frequent concern within the PANS/PANDAS community. Bullying is never the child’s fault. When symptoms are misunderstood, children may be labeled as...
January 1, 2026
Supportive Oligonucleotide Therapy (SOT): Emerging Approaches in Lyme Disease Treatment
Supportive Oligonucleotide Therapy (SOT): Emerging Approaches in Lyme Disease Treatment An increasing number of patients in the community are exploring Supportive Oligonucleotide Therapy (SOT), with...
December 19, 2025
Holiday Survival Guide for Families & Individuals Navigating PANS/PANDAS
At ASPIRE, the Alliance to Solve PANS & Immune-Related Encephalopathies, we support families facing PANS/PANDAS throughout every stage of life. This holiday guide shares the practical strategies...
Babesia and Bartonella Species DNA in Blood and Enrichment Blood Cultures from People with Chronic Fatigue and Concurrent Neurological Symptoms.
Breitschwerdt EB, Maggi RG, Bush JC, Kingston E. Babesia and Bartonella Species DNA in Blood and Enrichment Blood Cultures from People with Chronic Fatigue and Concurrent Neurological Symptoms. Pathogens. 2026; 15(1):2. doi.org/10.3390/pathogens15010002
- Study included 50 individuals with chronic fatigue lasting 6 months to 19 years and neurological symptoms
- 23 of 50 participants had evidence of Babesia and/or Bartonella infection
- Babesia DNA detected in 12 of 50 participants (24%)
- Bartonella DNA detected in 13 of 50 participants (26%)
- Co-infection with both genera confirmed in 2 participants
- Findings support a potential association between these infections and presentations consistent with ME/CFS
- Authors emphasize the need for larger, prospective studies to clarify contribution or causality
Ecological dynamics of blacklegged ticks, vertebrate hosts, and associated zoonotic pathogens in northeastern forests
LaDeau, Shannon L., KellyOggenfuss, AlexanderSchmidt, SaravananThangamani, and Richard S.Ostfeld. 2025. “Ecological Dynamics of Blacklegged Ticks, Vertebrate Hosts, and Associated Zoonotic Pathogens in Northeastern Forests.” Ecosphere16(12): e70508. https://doi.org/10.1002/ecs2.70508
Researchers tested 2,000+ blacklegged ticks in New York over 9 years
• 38% of ticks carried at least one pathogen capable of infecting humans
• About 10% carried multiple pathogens (co-infection)
• The most common combination was Lyme disease + Babesia microti
• Babesia was found in 21% of ticks, higher than previous estimates
• Bartonella was not detected in the ticks tested at these study sites
December 16, 2025
New Jersey PANS PANDAS Updates
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
December 16, 2025
Connecticut PANS PANDAS Contact Form
Share your contact information to receive updates specific to PANS/PANDAS in Nebraska, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you...
December 16, 2025
Ohio PANS/PANDAS Contact Form
Share your contact information to receive updates specific to PANS/PANDAS in Nebraska, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you...
December 16, 2025
Nebraska PANS PANDAS Contact Form
Share your contact information to receive updates specific to PANS/PANDAS in Nebraska, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you...
December 14, 2025
Ohio PANS PANDAS Updates
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...