Nebraska PANS PANDAS Coalition is lead by one of ASPIRE’s Nebraska Lead, Grace Troupe. Please contact her directly to become involved in legislative advocacy in Nebraska. Please visit the NE...
Vermont Legislative Action is lead by Devin Gaskell. Please contact Devin directly to become involved in legislative advocacy in Vermont. You can also follow the Vermont PANS PANDAS Network on...
Share your contact information to receive updates specific to PANS/PANDAS in Iowa, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you...
For up-to-date information on Oregon’s legislative action: Make sure to follow NWPPN’s Facebook page for updates and questions. To contact NWWP directly, please email them – NWPPN’s...
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
Bullying & PANS/PANDAS Bullying is a frequent concern within the PANS/PANDAS community. Bullying is never the child’s fault. When symptoms are misunderstood, children may be labeled as...
Supportive Oligonucleotide Therapy (SOT): Emerging Approaches in Lyme Disease Treatment An increasing number of patients in the community are exploring Supportive Oligonucleotide Therapy (SOT), with...
At ASPIRE, the Alliance to Solve PANS & Immune-Related Encephalopathies, we support families facing PANS/PANDAS throughout every stage of life. This holiday guide shares the practical strategies...
Breitschwerdt EB, Maggi RG, Bush JC, Kingston E. Babesia and Bartonella Species DNA in Blood and Enrichment Blood Cultures from People with Chronic Fatigue and Concurrent Neurological Symptoms. Pathogens. 2026; 15(1):2. doi.org/10.3390/pathogens15010002
LaDeau, Shannon L., KellyOggenfuss, AlexanderSchmidt, SaravananThangamani, and Richard S.Ostfeld. 2025. “Ecological Dynamics of Blacklegged Ticks, Vertebrate Hosts, and Associated Zoonotic Pathogens in Northeastern Forests.” Ecosphere16(12): e70508. https://doi.org/10.1002/ecs2.70508
Researchers tested 2,000+ blacklegged ticks in New York over 9 years
• 38% of ticks carried at least one pathogen capable of infecting humans
• About 10% carried multiple pathogens (co-infection)
• The most common combination was Lyme disease + Babesia microti
• Babesia was found in 21% of ticks, higher than previous estimates
• Bartonella was not detected in the ticks tested at these study sites
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
