About Assessments Child Find: The Individuals with Disabilities Education Improvement Act (IDEA ’04) requires states to develop a system for identifying, locating, and evaluating all children...
PANS & Eating Restrictions This section on Restrictive Eatings at School is part of a larger section on Restrictive Eating seen in PANS PANDAS. Make sure to read the entire...
Lucy Fry – Founding Board Member Take care of yourself. “Should the cabin lose pressure, oxygen masks will drop from the overhead area. Please place the mask over your own mouth...
Theodora A. Manolis, M.D., Evdoxia J. Apostolopoulos, B.Sc., Antonis A. Manolis, M.S., B.Sc., Helen Melita, M.D., Antonis S. Manolis, M.D., COVID-19 Infection: A Neuropsychiatric Perspective. 19 Jul 2021. Jnl of Neuropsychiatry & Clinical Neurosciences. DOI: 10.1176/appi.neuropsych.20110277
“In addition to acute neuropsychiatric manifestations, COVID-19 may also produce late neuropsychiatric sequelae as a function of the psychoneuroimmunological cascade that it provokes. The present article presents a state-of-the-science review of these issues through an integrative review and synthesis of case series, large-cohort studies, and relevant meta-analyses. Heuristics for evaluation and further study of the neuropsychiatric manifestations of SARS-CoV-2 infection are offered.”
This is the first of a series of interviews with influential PANDAS/PANS and Lyme advocates. How do they DO it? How do they contend with their own challenges as well...
I have had the privilege of getting to know Cici a little bit this year, and we had chatted about her sharing part of her PANS PANDAS BGE experience with...
ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
Kelly Wooldridge – Board Member Be intentional with the time you spend with your non-PANS kiddos, especially if they are independent and seem to be doing “ok.” They likely need...
Murciano M, Biancone DM, De Luca F, Piras MD, Guido CA, Spalice A. Breastfeeding in Pediatric Acute-Onset Neuropsychiatric Syndrome: An Italian Observational Study. Frontiers in Pediatrics. Vol 9. 2021. DOI:10.3389/fped.2021.682108
Christine Amabile, MSW, LCSW, C-SSWS – Key Volunteer Create a concise timeline. It should be a few typed pages to give to all providers including symptoms, treatment interventions, medications,...
Lisa Williams, a certified Divorce Coach, shares 5 tips for PANS PANDAS when the parents are divorced or separated. When divorced, have medications/supplements at both homes. Have your child’s...