June 25, 2021
Prior Written Notice
Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s...
June 24, 2021
Wendy Nawara – 5 PANS PANDAS Tips/Advice
Wendy Nawara – Founding Board Member Get a pet. Pets can provide a family with a concentration other than your sickness. Assign duties and expectations of caring for the pet,...
June 23, 2021
ASPIRE Lecture on PANS PANDAS with Susan Swedo, MD & Gabriella True for Comitato Italiano Genitori Pandas
Susan Swedo, MD and Gabriella True of ASPIRE - Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS...
June 23, 2021
Role of tonsillectomy and adenoidectomy in parental satisfaction of treatments for PANDAS
Navin Prasad, Stephanie Y. Johng, Daniel Powell, Matthew Williams, Elizabeth Latimer, Earl H. Harley, Role of tonsillectomy and adenoidectomy in parental satisfaction of treatments for PANDAS,...
June 17, 2021
Christine Kapetanakis – 5 PANS PANDAS Tips/Advice
Christine Kapetanakis – Board Member Lead with love. Do not yell or make your loved one with PANS more anxious than they are. Throw everything you know about reprimanding out...
Obsessive-Compulsive Disorders and Functional Urinary Disorders: A Fortuitous Association?
Ng QX, Lim YL, Loke W, Yeo WS, Chee KT. Obsessive-Compulsive Disorders and Functional Urinary Disorders: A Fortuitous Association? Behavioral Sciences. 2021; 11(6):89. DOI: 10.3390/bs11060089
- Patients with OC symptoms appeared to have increased occurrence of functional urinary symptoms, e.g., overactive bladder, increase in urgency, frequency, incontinence and enuresis.
- This is even more common amongst patients with PANS and PANDAS, as only OCD
June 15, 2021
Medication Log Sheet
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...
June 15, 2021
Sample Letter – Section 504 Determination Request
Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address)...
June 15, 2021
PANS PANDAS Appointment Checklist & Worksheets
Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results,...
June 15, 2021
PANS PANDAS Symptoms Tracking and Rating Scales – Worksheet
Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and...
On Having a PANS PANDAS and Tourette Syndrome Diagnosis
So, I noticed Sam posting about Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD), and PANS PANDAS (PP) on Instagram a few months ago. And my first thought was – oooh...
June 11, 2021
PANDAS – What is it and How Can It Be Treated – Giggle Magazine
Giggle Magazine article on PANDAS. Page 23-24 of their June/July 2021 issue is available online....