Read Getting Started with 504 & IEP Plans first. Special Education is provided through the Individualized Education Program (IEP) for a student with a qualifying disability. The primary purpose...
How to Ask for an Evaluation Written Request – Put all requests and correspondence in writing. Ask for an evaluation and explain why Provide medical documentation of diagnosis and supporting...
Prepare for an IEP or 504 Planning Meeting Create a list of your child’s areas of need. Before the meeting, list your child’s struggles and deficits. Know that it is...
Prior Written Notice (PWN) is a written explanation of why the district proposes or rejects a change to a student’s IEP. This includes if you want to challenge the district’s...
Wendy Nawara – Founding Board Member Get a pet. Pets can provide a family with a concentration other than your sickness. Assign duties and expectations of caring for the pet,...
Susan Swedo, MD and Gabriella True of ASPIRE - Alliance to Solve PANS & Immune-Related Encephalopathies provide a brief overview of PANS...
Navin Prasad, Stephanie Y. Johng, Daniel Powell, Matthew Williams, Elizabeth Latimer, Earl H. Harley, Role of tonsillectomy and adenoidectomy in parental satisfaction of treatments for PANDAS,...
Christine Kapetanakis – Board Member Lead with love. Do not yell or make your loved one with PANS more anxious than they are. Throw everything you know about reprimanding out...
Ng QX, Lim YL, Loke W, Yeo WS, Chee KT. Obsessive-Compulsive Disorders and Functional Urinary Disorders: A Fortuitous Association? Behavioral Sciences. 2021; 11(6):89. DOI: 10.3390/bs11060089
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...
Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address)...
Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results,...