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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
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    • Treating PANS and PANDAS
    • PANS and PANDAS at School
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Enroll in Current Studies

Research Study on the Impact of PANS/PANDAS on Parents
December 7, 2024
Research Study on the Impact of PANS/PANDAS on Parents

Seeking Participants: Research Study on the Impact of PANS/PANDAS on Parents Parenting a child with PANS or PANDAS is a journey filled with challenges, resilience, and hope. Noelle Preston, a...

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Category:  Blog, Current Studies, Featured on Homepage
IVIG Trial Recruitment is Closed
June 26, 2024
IVIG Trial Recruitment is Closed

Octapharma/PACE Foundation IVIG Trial   Update: 6-26-24 Read the Announcement from the PACE Foundation.   Given the recent changes posted on ClinicalTrials.Gov, we wanted to update...

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Category:  Current Studies, Featured on Homepage
Tags:  IVIG
Research Update – Clinical Neuroimmunology Group, Children’s Hospital at Westmead and University of Sydney 
February 3, 2024
Research Update – Clinical Neuroimmunology Group, Children’s Hospital at Westmead and University of Sydney 

  🌟 Calling all members of the PANS/PANDAS community! 🌟 Research Update – Clinical Neuroimmunology Group, Children’s Hospital at Westmead and University of Sydney  The Clinical...

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Category:  Blog, Current Studies, Featured on Homepage
Technical Report – Self-Harm & Suicidality in PANS and Immunopsychiatric Disorders
June 27, 2023
Technical Report – Self-Harm & Suicidality in PANS and Immunopsychiatric Disorders

Shedding Light on the Link Between Self-Harm and Suicidality in PANS and Immunopsychiatric Disorders Gunilla Gerland, former Chair of SANE, has translated their recent white paper on suicidality and...

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Category:  Behavioral Health, Blog, Current Studies, Featured on Homepage
Parent & Teacher Perspectives on Effectiveness of Academic Accommodations & Behavioral Supports for Students with PANS PANDAS
May 16, 2022
Parent & Teacher Perspectives on Effectiveness of Academic Accommodations & Behavioral Supports for Students with PANS PANDAS

Dissertation Study Enrollment:   Mary Crombez, Madonna University Doctoral Candidate, is working on a new research study to complete a doctorate in Doctor of Education (EdD) in Leadership and...

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Category:  Blog, Current Studies, Featured on Homepage, Schools & Educators
Enroll Today – Experience of Caregivers of Children with PANS/PANDAS
February 8, 2022
Enroll Today – Experience of Caregivers of Children with PANS/PANDAS

Attention Parents and Guardians of children with PANS/PANDAS! The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians...

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Category:  Blog, Current Studies, Featured on Homepage
Doctoral Study – Perceptions of Factors in PANDAS remission
February 3, 2022
Doctoral Study – Perceptions of Factors in PANDAS remission

Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection (PANDAS): A Qualitative Study of Parental Perceptions of Factors in Remission Doctoral Dissertation: Pediatric...

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Category:  Current Studies, Featured on Homepage
Experiences of Families and Patients Affected with PANS PANDAS
November 11, 2021
Experiences of Families and Patients Affected with PANS PANDAS

You are being invited to participate in a research study of the University of Connecticut, called Experiences of Families Affected by PANS/PANDAS Around the World. Patients and parents of patients...

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Category:  Blog, Current Studies, Featured on Homepage
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH
March 18, 2021
Impact of the Coronavirus Pandemic on Children with PANS/PANDAS Survey from MGH

You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with...

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Category:  Blog, Current Studies, Featured on Homepage
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research
March 5, 2021
Mass General Recruiting for PANDAS and Magnetic Resonance Imaging MRI Research

MGH is looking for healthy controls to complete a single MRI and some brief psychological assessments to study Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep...

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Category:  Current Studies
Tags:  MRI, Neuroimaging
Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS
March 5, 2021
Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS

This study evaluates the efficacy of naproxen sodium treat OCD symptoms in patients with suspected or diagnosed Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections...

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Category:  Blog, Current Studies
Tags:  NSAIDs
PANS Epidemiology Study & Registry
January 18, 2021
PANS Epidemiology Study & Registry

Enroll Today I am excited to share a recent conversation with Jessica Gavin, PRAI Board Chair & IPR Principal Investigator, to talk about the International PANS Registry (IPR) and the...

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Category:  Blog, Current Studies
Page 1 of 212»

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