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  • What is PANS?
    • Definition
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    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
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    • PANS PANDAS Information for Clinicians
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Enroll in Current Studies

Lyme Disease Research Study
September 30, 2020
Lyme Disease Research Study

Lyme disease research study enrolling...

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Category:  Blog, Current Studies
Tags:  Lyme Disease
IVIG for PANS PANDAS Study
September 2, 2020
IVIG for PANS PANDAS Study

Study To Compare The Effect of Panzyga Versus Placebo in Patients With Pediatric Acute-onset Neuropsychiatric Syndrome. This will be a double blind placebo study of IVIG for...

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Category:  Blog, Current Studies, Featured on Homepage
PANS/PANDAS During the Corona Pandemic Study
June 5, 2020
PANS/PANDAS During the Corona Pandemic Study

Please complete this study from the Karolinksa Institute on PAN/PANDAS during the Corona Pandemic. It will only take up to ten minutes. If you have several children with PANS/PANDAS, you can take the...

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Category:  Blog, Current Studies
Tags:  coronavirus, COVID19
Occupational Performance Patterns in Children with PANS
April 6, 2020
Occupational Performance Patterns in Children with PANS

Do you have a child aged between 5 and 12 years with a PANS/ PANDAS diagnosis and currently live in either Australia, UK, USA, Canada, Ireland or New Zealand? Researchers at the University of...

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Category:  Current Studies
Tags:  Study
Caregiver Experience in PANS/PANDAS
April 6, 2020
Caregiver Experience in PANS/PANDAS

PARTICIPANTS NEEDED FOR RESEARCH PROJECT ON: Examining caregivers’ lived experiences since their child’s (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal...

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Category:  Current Studies
Tags:  Study
Enroll in UCONN Study – Families’ Experiences with PANS
March 7, 2020
Enroll in UCONN Study – Families’ Experiences with PANS

University of Connecticut Parents/Caregivers Wanted for a Research Study on Families’ Experiences with PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) We will be conducting interviews with...

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Category:  Current Studies
Tags:  Study
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