New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor
The Louisa Adelynn Johnson Fund for Complex Disease.
Call to Action
Current Call to Action as of Dec 16, 2025
A supportive New Jersey State Senator is seeking a parent willing to share their story in a short video for use in a press conference or media release. The goal is to help move S4444 onto the Senate Commerce Committee agenda.
Update A5325 & S4444
These bills have been tabled for 2025. The great news is that Senator Lagana is going to co-sponsor the bill when reintroduced in January and post it to the agenda of the first meeting of the Senate Commerce Committee in the new year! Amazing together what we have accomplished
New Jersey Assembly Bill (A5325) & Senate Bill (S4444) would require hospital and medical service corporations, health service corporation contracts, individual and group health insurance policies, individual health benefit plans, small employer health benefit plans, HMOs, the State Health Benefits Commission, and the School Employees Health Benefits Commission to cover expenses incurred in the diagnosis and treatment of PANDAS and PANS that is prescribed or ordered by the treating physician. Coverage must include, but is not limited to, antibiotics, medication and behavioral therapies to manage neuropsychiatric symptoms, immunomodulating medicines, plasma exchange, and intravenous immunoglobulin therapy.
The Assembly has referred A5325 to the Assembly Financial Institutions and Insurance Committee. A companion bill in the New Jersey Senate (S4444) also has been referred to the Senate Commerce Committee.
See below for the Current Call to Action
2025 Legislative Action
There are two companion bills currently in the Senate and the Assembly. Senate Bill and Assembly Bill A5325. Please make sure you are referring to the correct bill number when you are speaking to your Senator and Assembly person.
Senate Bill S4444: Requires health insurance coverage for certain neurological diseases
Session 2024 – 2025
Bill Language: HTML
Bill Status:
- Bill S4444 – Requires health insurance coverage for certain neurological diseases
Introduced 5/19/2025: Referred to Senate Commerce Committee
Primary Sponsor: Beach, James
Co-Sponsor: Space, Parker, Henry, Owen, Singleton, Troy, Corrado, Kristin M., Gopal, Vin
Assembly Bill A5325: Requires health insurance coverage for certain neurological diseases
Session 2024 – 2025
Bill Language: HTML
Bill Status:
Introduced 2/20/2025: Referred to Assembly Financial Institutions and Insurance Committee
Primary Sponsor: Dan Hutchison
Co-Sponsor: Michael Venezia, Annette Quijano, Cody D. Miller
General Legislative Information
- Legislative Recap – PANS PANDAS Legislation Nationwide
- How Get Started: How to talk to your state representative
- Look Up Your State Representative & State Senator in your district
- ASPIRE Legislative Action Toolkit: Information for Legislators Toolkit
- Legislative Talking Tips
- Legislative Writing Points & Examples: Testimony & Short Form Emails
Previous Call to Action
How to Help Today! – ACTION ALERT – December 9, 2025
For updated call to action items, please refer to TLAJFundforComplexDisease.
New Jersey residents, please join our urgent call to action. Assembly Bill 5325 (A5325) and Senate Bill 4444 (S4444) to require insurance coverage for the treatment of PANS and PANDAS are pending in the Assembly Financial Institutions and Insurance Committee and Senate Commerce Committee, respectively. We are asking New Jersey residents to please contact the offices of the committee Chairs to request the committee’s consideration and favorable report of A5325 and S4444 out these committees so that they can move forward in the legislative process.
Details are provided regarding the pending legislation below. If you prefer, use our email template which you can easily personalize. Please remember to edit the template so that you are including the appropriate information for Chair Freiman or Chair Lagana provided in parenthesis and remove the bold text, accordingly.
Assembly Bill 5325 (A5325)
Please contact the office of Assembly Financial and Institutions and Insurance (AFI) Committee Chair, Assemblyman Roy Freiman, to express the urgent need for the passage of A5325, which requires insurance coverage for the treatment of devastating neuroimmune conditions PANS and PANDAS. Please kindly request that the AFI Committee consider and report A5325 out of the committee so that the bill can move forward in the legislative process. Please note that the passage of this bill would provide much needed relief to affected New Jersey children and families.
You can contact Assemblyman Freiman’s office to convey this request by phone at (908) 829-4191 or email asmfreiman@njleg.org
If you are a constituent living in Assemblyman Freiman’s district, please be sure to share that as well. If you are unsure of your district, please visit the New Jersey Legislature and enter your address to find your district.
Senate Bill 4444 (S4444)
Please contact the office of Senate Commerce Committee Chair, Senator Joseph Lagana, to express the urgent need for the passage of S4444, which requires insurance coverage for the treatment of devastating neuroimmune conditions PANS and PANDAS. Please kindly request that the committee consider and report S4444 out of the Commerce Committee so that the bill can move forward in the legislative process. Please note that the passage of this bill would provide much needed relief to affected New Jersey children and families.
You can contact Senator Lagana’s office to convey this request by phone at (201) 576-9199 or email SenLagana@njleg.org
If you are a constituent living in Senator Lagana’s district, please be sure to share that as well. If you are unsure of your district, please visit the New Jersey Legislature and enter your address to find your district.
Talking Point Template from Alyssa Johnson – Google Doc
Legislative Talking Tips
Legislative Writing Points and Examples
- Visit Section Today!
- What to Include in Testimony Letters and Talking Points
- Impact Statement Examples
- About PANS/PANDAS Examples
- Short Form Support Emails
Contacting Your Legislators
To look up your state legislators, please visit the New Jersey legislature website and enter your address. Then click on the blue location pin to select district details, which will include your two Assembly members and Senator. You also will see a contact number to reach your members by phone. Or you can use this tool – Look up your legislator.
To send an email, the email format is for Senators – sen(last name)@njleg.org and for Assemblymen – asm(lastname)@njleg.org or Assemblywomen – asw(lastname)@njleg.org.
- Senators:
sen[lastname]@njleg.org - Assemblywomen:
asw[lastname]@njleg.org - Assemblymen:
asm[lastname]@njleg.org
For example, to reach Senator Amato’s office, please email senamato@njleg.org or for Assemblywoman Bogalie, email aswbagolie@njleg.org.
If the member has a hyphenated or two word last name, please contact Alissa Johnson for assistance in locating an email address. Alternatively, you can reach out using the contact form on each legislator’s page on the New Jersey legislative website.
Questions?
Please contact Alissa Johnson at ajohnson@policyconsult.com Thank you!
Return to ASPIRE Legislative Resources
Gabriella True
