New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor
The Louisa Adelynn Johnson Fund for Complex Disease.
2025 Legislative Action
There are two companion bills currently in the Senate and the Assembly. Senate Bill and Assembly Bill A5325. Please make sure you are referring to the correct bill number when you are speaking to your Senator and Assembly person.
Assembly Bill A5325: Requires health insurance coverage for certain neurological diseases.
Session 2024 – 2025
Bill Language: HTML
Bill Status:
Introduced 2/20/2025: Referred to Assembly Financial Institutions and Insurance Committee
Primary Sponsor: Dan Hutchison –
Co-Sponsor: Michael Venezia, Annette Quijano, Cody D. Miller
Senate Bill S4444: Requires health insurance coverage for certain neurological diseases.
Session 2024 – 2025
Bill Language: HTML
Bill Status:
Introduced 2/20/2025: Referred to Assembly Financial Institutions and Insurance Committee
Primary Sponsor: Dan Hutchison –
Co-Sponsor: Michael Venezia, Annette Quijano, Cody D. Miller
Call to Action
New Jersey Assembly bill (A5325) would require hospital and medical service corporations, health service corporation contracts, individual and group health insurance policies, individual health benefit plans, small employer health benefit plans, HMOs, the State Health Benefits Commission, and the School Employees Health Benefits Commission to cover expenses incurred in the diagnosis and treatment of PANDAS and PANS that is prescribed or ordered by the treating physician. Coverage must include, but is not limited to, antibiotics, medication and behavioral therapies to manage neuropsychiatric symptoms, immunomodulating medicines, plasma exchange, and intravenous immunoglobulin therapy.
The bill A5325 has been referred to the Assembly Financial Institutions and Insurance Committee. A companion bill in the New Jersey Senate (S4444) also has been referred to the Senate Commerce Committee.
How to Help Today!
As we prepare to push for these bills to move forward in the legislative process, we need the assistance of New Jersey families. Please help to advance these measures by contacting your state legislators as follows:
- Contact your district’s two Assembly members by email or phone and ask them to please support Assembly Bill 5325 to require health insurance coverage for the treatment of PANS and PANDAS and consider becoming a co-sponsor.
- Contact your district’s Senator by email or phone and ask them to please support Senate Bill 4444 to require health insurance coverage for the treatment of PANS and PANDAS and consider becoming a co-sponsor.
Just three calls or emails per person could make a huge difference in the lives of children and families suffering as a result of these devastating conditions if we work collectively. We are so grateful for your help!
Contacting Your Legislators
To look up your state legislators, please visit the New Jersey legislature website and enter your address. Then click on the blue location pin to select district details, which will include your two Assembly members and Senator. You also will see a contact number to reach your members by phone. Or you can use this tool – Look up your legislator.
To send an email, the email format is for Senators – sen(last name)@njleg.org and for Assemblymen – asm(lastname)@njleg.org or Assemblywomen – asw(lastname)@njleg.org.
- Senators:
sen[lastname]@njleg.org - Assemblywomen:
asw[lastname]@njleg.org - Assemblymen:
asm[lastname]@njleg.org
For example, to reach Senator Amato’s office, please email senamato@njleg.org or for Assemblywoman Bogalie, email aswbagolie@njleg.org.
If the member has a hyphenated or two word last name, please contact Alissa Johnson for assistance in locating an email address. Alternatively, you can reach out using the contact form on each legislator’s page on the New Jersey legislative website.
Questions?
Please contact Alissa Johnson at ajohnson@policyconsult.com Thank you!
General Legislative Information
- How to talk to your state representative
- Find your State Representative and State Senator in your district
- ASPIRE Legislative Action: Information for Legislators Toolkit
- Legislative Talking Tips
- Legislative Writing Points and Examples
- Visit Section Today!
- What to Include in Testimony Letters and Talking Points
- Impact Statement Examples
- About PANS/PANDAS Examples
- Short Form Support Emails
- Visit Section Today!
Gabriella True
