July 2, 2022
Rhode Island PANS PANDAS Updates
Senate Bill No. 2203 SUB B Passes Senate Bill No. 2203 SUB B as amended and House Bill No. 7503 SUB B as amended have passed!! We are now waiting for...
Legislative Resources
July 30, 2021
IOCDF Virtual Voices for Mental Health: An Online Day of Action
Virtual Voices for Mental Health program 2021 ASPIRE is again partnering with IOCDF on Virtual Voices for Mental Health program in which we call on our community to contact their...
July 15, 2021
ASPIRE Supports BIOSIM Act
ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
April 16, 2021
Ohio PANS PANDAS Updates
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 27, 2021
Legislative Thank You Letter Template
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their...
March 14, 2021
Illinois PANS PANDAS Updates
Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...