Massachusetts PANS PANDAS Updates For all updates and more information: Please follow the Massachusetts PANS/PANDAS Legislation Facebook page. General Legislative Information Legislative Recap...
Please support NWPPN’s lead to mandate insurance coverage for PANS...
Connecticut Legislative Action is lead by one of ASPIRE’s Please contact her directly to become involved in legislative advocacy in Connecticut. Don’t forget to register for the next...
General Legislative Information Legislative Recap – PANS PANDAS Legislation Nationwide How Get Started: How to talk to your state representative Look Up Your State Representative & State...
General Legislative Information Legislative Recap – PANS PANDAS Legislation Nationwide How Get Started: How to talk to your state representative Look Up Your State Representative & State...
Virtual Voices for Mental Health program 2021 ASPIRE is again partnering with IOCDF on Virtual Voices for Mental Health program in which we call on our community to contact their...
ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their...
Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...
