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March 6, 2025
Georgia PANS PANDAS Action Updates
Call To Action for 2025 Legislation Urgent Action Needed! Families battling #PANS/#PANDAS deserve insurance coverage for life-changing treatments. #SB205, the companion bill to #HB124, is in the...
March 6, 2025
How a Georgia House bill could create options in treating a devastating pediatric diagnosis
The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...
March 1, 2025
West Virginia PANS PANDAS Updates
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
IVIG Stopped Ella’s Self-Harm
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
February 25, 2025
Restricted Eating & PANS Zoom ChitChat
Zoom - Restricted Eating ChitChat - Tuesday, April 1 - 6:30 PM CT...
February 18, 2025
Homeschooling and PANS/PANDAS: Resources for Families
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
February 14, 2025
Resources for Eating Restrictions in PANS/PANDAS
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find...
February 12, 2025
Health Insurers Deny 850 Million Claims a Year
The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for...
February 1, 2025
Louisiana Zoom ChitChat
Zoom - Louisiana ChitChat - Thursday, February 27 - 3:00 PM CT...
January 17, 2025
NJSSNA Spring 2025 Conference Pearls of Wisdom for School Nurses
ASPIRE to Speak at NJSSNA Spring 2025 Conference – Pearls of Wisdom for School Nurses Conference Details Friday, March 28, 2025 at 6:00pm ET – Saturday, March 29,...