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The Wall Was Hard to See

This story exemplifies how it is sometimes hard to see the sudden onset or sudden worsening of PANS PANDAS symptoms as you are living (struggling) through it. Remember, someone with PANS PANDAS does...

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IVIG for PANS PANDAS Study

Study To Compare The Effect of Panzyga Versus Placebo in Patients With Pediatric Acute-onset Neuropsychiatric Syndrome. This will be a double blind placebo study of IVIG for...

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Parent Regulation Cheat Sheet

Elisha Bidwell, LMFT discusses her Parent Regulation Cheat Sheet and how PANS PANDAS caregivers can utilize it. Click to download a printable copy of the Parent Regulation Cheat Sheet Gabriella:...

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Overview of Lyme & Tick Borne Illness – Dr. Moorcroft

"Education is critical to know what is out there. If we can identify cases of Lyme disease early, we can treat them right away. Then we decrease the likelihood of an infection leading to chronic...

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Just Like Any Other Adult!

I am just like any other adult now, thanks to the IViGs and therapy. Do not get me wrong; I have struggled so much with my PANS PANDAS that I have wanted to give up many times. I have cried so hard...

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ASPIRE Celebrates its first year anniversary!

What a year! Thank you for being a part of ASPIRE’s first year. We believe in the power of WE; it takes an entire community to fight for better outcomes for those affected by PANS/PANDAS....

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Education Series from New England Center for Health

ASPIRE is happy to announce that New England Center for Health, lead by Dr. Nancy O’Hara (ASPIRE Professional Advisory Board Member), Dr. Lindsey Wells, and Vicki Kobliner will host zoom calls...

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Diagnosis Day

Diagnosis Stories

Do you remember the day your child officially got a diagnosis of PANS/PANDAS? Was it your first doctor? Was it your fifth? Were you devastated? Were you relieved to have an answer and the start of a...

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Susan Swedo, MD on Autoantibody Biomarkers for Basal Ganglia Encephalitis

Dr. Swedo briefly explains the importance of this research and its results.  The Frontiers article is an important replication and extension of previous work by Dr. Madeleine Cunningham and her...

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Lyme Disease & Tick Borne Infections Fundamentals – Dr. O’Hara

Lyme ­­is it Affecting My Child? You Bet Your Rash & Other Signs, Symptoms, and Treatments Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented...

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PANS PANDAS Parents & Therapy

ASPIRE sits down with Julie Cox, LCSW, to discuss why therapeutic strategies can be beneficial to PANS PANDAS parents and caregivers, how not to pathologize everything, and ways to accept that the...

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Antibodies From Children With PANDAS Bind Specifically to CINs and Alter Their Activity

Interview with Christopher Pittenger, MD on the study: Antibodies From Children With PANDAS Bind Specifically to Striatal Cholinergic Interneurons and Alter Their Activity ASPIRE sat down with...

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