Vermont Legislative Action is lead by Vermont PANS PANDAS Network. Please contact her directly to become involved in legislative advocacy in Vermont.
Please see below for Bill information and Call to Action items.
Fill in the Vermont Contact Form
Share your contact information to receive updates specific to PANS/PANDAS legislative updates in Nebraska. Rest assured, your information will not be sold or shared, and you will not be added to ASPIRE’s general mailing list. This is strictly for Vermont-based updates.
Fill in the contact form today: Vermont Form
Sign Up for the ASPIRE Newsletter: Newsletter Form
General Legislative Information
- Legislative Recap – PANS PANDAS Legislation Nationwide
- How Get Started: How to talk to your state representative
- Look Up Your State Representative & State Senator in your district
- ASPIRE Legislative Action Toolkit: & Handouts Information for Legislators Toolkit
- Legislative Talking Tips
- Legislative Writing Points & Examples: Testimony & Short Form Emails
Current Legislative Efforts
S.251- An act relating to health insurance coverage for diagnosis and treatment of certain pediatric neuropsychiatric conditions
Bill Status:
- S.251 – An act relating to health insurance coverage for diagnosis and treatment of certain pediatric neuropsychiatric conditions
Bill Language: S.251 (pdf)
Current Bill Summary: This bill proposes to health insurance coverage for diagnosis and treatment of Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS).
Location
Sponsor(s)
Current Call to Action Items
Vermont PANS PANDAS Coalition needs you to get involved today!
Progress is being made in Vermont but real change happens when legislators hear directly from the families they represent. You don’t need to be an expert in policy or medicine. Legislators speak with constituents every day, and they expect to hear from families about issues affecting their health and access to care. Your lived experience is powerful. Sharing your story helps lawmakers understand what PANS/PANDAS looks like in real life and why action is needed. We’ll guide you every step of the way, and participation is always at your comfort level.
** CTA 1 – Vermont CONTACT Form
Fill out the form. While VTPPN will announce CTAs on social media, they must be able to reach people more quickly & consistently!
** CTA 2 – MEET With Your SENATORS p lease contact your senator’s office to request an in-person or virtual meeting. Tell your story. Ask them to support SB 1263 and how the lack of insurance based care has financially, physically, emotionally impacted the patient and the family. Focus on key points as outlined in ASPIRE talking/writing points.
Return to ASPIRE Legislative Resources
Gabriella True
