Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) is a neuropsychiatric syndrome that develops after a Streptococcus pyogenes (group A strep)...
Occupational Performance Fluctuates With PANS Disease State Newby MJ, Lane SJ, Haracz K, et al. Occupational performance patterns in children with paediatric acute-onset neuropsychiatric syndrome....
ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear,...
If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme...
Arthritis in Children with Psychiatric Deterioration: What This Case Series Shows Ma M, Sandberg J, Farhadian B, Silverman M, Xie Y, Thienemann M, Frankovich J. Arthritis in Children with Psychiatric...
For Legislative State Leads PANS Legislation: What It Is and How ASPIRE Supports States Across the United States, families affected by PANS and PANDAS face a common problem: access to...
A Chat About Legislative Advocacy Gabriella: Before we start, I want to make it clear who this is for. This isn’t meant for professional advocates or trained lobbyists. It’s for...
When PANS and IBD Co-Occur: What This Case Series Suggests Tang AW, Swedo SE, Pasternack M, Murphy T, et al. Eight cases of pediatric acute-onset neuropsychiatric syndrome: clinical characteristics....
In this study, neurological soft signs (NSS) are defined as subtle neurological examination findings that may reflect dysfunction in motor coordination and movement regulation, particularly related...
Why State-Mandated Coverage for PANS/PANDAS Is Now Urgent and Justified Aetna has updated its medical policy to recognize PANS/PANDAS and to cover IVIG when medically necessary for patients who meet...
Legislative Takeaway The OHIC report was required to answer a narrow statutory question about short-term insurer savings, not whether PANS/PANDAS coverage is medically necessary or beneficial to...
Federal Update: Advancing Research and Recognition for PANS/PANDAS ASPIRE does not lead federal legislative efforts, but we actively support federal initiatives that advance research, federal...