Mother’s Day
Happy Mother's Day!
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Autism One Virtual Summit
Autism One Virtual Summit
Sign up to watch lectures via live feed for free or pay a flat fee to watch all lectures at any time.
Occupational Therapy OT and PANS PANDAS webinar
Michelle Newby is running another free webinar for Occupational Therapists and Occupational Therapy Assistants wanting to learn more about PANS PANDAS and how they can best support their client's unique needs. The workshop will cover:
PANS PANDAS Grand Rounds at OHSU with Kiki Chang, MD
Psychiatry Grand Rounds "Pediatric Acute Onset Neuropsychiatric Syndrome (PANS): Recognition and Treatment of an Often Overlooked Syndrome in Children" OHSU Department of Psychiatry is hosting Kiki Chang, M.D. who will present on PANS PANDAS. This event is sponsored by NWPPN. For details on the event and how to watch the Grand Rounds, please read here. […]
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PANS PANDAS Awareness Day
Join ASPIRE on PANS PANDAS Awareness Day on October 9, 2020, to spread awareness and help educate the public about this devastating condition. Change Your Facebook Profile Picture Frame! PANS PANDAS Awareness Day is October 9th. ASPIRE has four frames for you to choose from so pick one and wear it with pride. Wear […]
PANDAS Italia – Management of the psychological & behavioral aspects of PANS in the family and school context
PANDAS Italia's Second Meeting on "Management of the psychological and behavioral aspects of PANS in the family and school context" Friday, October 9, 2020 at 9 AM – 1 PM UTC "L'incontro si propone, col tempo, di aiutare i genitori nella gestione dei bambini affetti da PANDAS e PANS (BGE) nell'ambito familiare e scolastico, data […]
Massachusetts Advocacy Day
Mass advocates and NEPANS bring a Facebook Live advocacy session on PANS PANDAS Awareness day. For more information, see the attached flyer. .
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Virtual Voices with IOCDF
To strengthen our voices and unite together, we need your help! Register today to participate in Virtual Voices for Mental Health to your community. Virtual Voices for Mental Health: An Online Day of Action on Oct. 12-13 International OCD Foundation & ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies #VirtualVoices4MH
Webinar with Kyle Williams, MD, PhD at MGH- New findings in PANDAS/PANS research
new findings in PANDAS/PANS research
Truth About Lyme Conference
For more details see:
Rare Disease Day 2021
ASPIRE is proud to be included as a friend of NORD's Rare Disease Day efforts.
Eating Disorder Awareness Day
One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight.
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ASPIRE Participates in Rare Across America
ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect Rare Disease. Senators and Representatives were asked to support important rare disease FY 2022 appropriat
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CEC National Convention Panel on PANS PANDAS
Session Abstract: This presentation provides an overview of how PANS/PANDAS impacts classroom functioning across physical, socio-emotional, academic, and behavioral domains. Presenters will describe strategies and initiatives to support students with these PANS/PANDAS at the classroom, school, and district levels.
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Sleep Awareness Week – PANS PANDAS
Learn more about PANS PANDAS and Sleep Issues
Doctor Day
Today is National Doctor's Day!
Pick up the phone and send an email to the PANS PANDAS doctor or doctors who have made a difference in your life!
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April is OT Month! Learn about Occupational Therapy for PANS PANDAS
Learn about Occupational Therapy for PANS PANDAS
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Autism Awareness Day
Come learn about PANS PANDAS and Autism.
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Sibling Awareness Day
PANS PANDAS affects the whole family. See two articles Therapy for Siblings of Children with PANS PANDAS Sibling Support in PANS PANDAS and look for Sibling stories in our PANS family story section.
WNDA 2021 Annual Conference
WNDA 2021 Annual Conference
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ASPIRE Celebrates Volunteer Appreciation Week
ASPIRE volunteers are the heart of our organization, aiming to improve the lives of those affected by PANS PANDAS.
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Masterclass – Identifying PANS and PANDAS: How to Start Your Family’s Healing Journey
Identifying PANS and PANDAS: How to Start Your Family’s Healing Journey Brought to you by Center for Fully Functional Health As a parent, it can be a challenge when you don’t feel well. But when your child is struggling, it turns your whole world upside-down. If your child has multiple symptoms that are seemingly unrelated […]
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Unstuck Summit
think we can all agree that we are living through difficult times… I know how much harder things have been since 2020 – and still now in 2021 – and even more so if you’re a parent whose kids are struggling with attention, learning, emotions, or behavior.
Our friend, colleague, and children’s mental health expert Dr. Roseann is hosting a free event called The Get Unstuck Parenting Summit. You’ll hear from trusted experts and from parents just like you, like ASPIRE’s president, Gabriella True, who have found answers to help improve their child’s behavior. Register for free right here!
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Poster Session at NATCON 2021 on PANS PANDAS
ASPIRE Presenting on PANS PANDAS
Children brought to behavioral health clinics with a sudden onset of changes in behavior and/or mood are often misdiagnosed and mistreated because clinicians don’t know the signs and symptoms of pediatric acute-onset neuropsychiatric disorders (PANS) or the related condition, pediatric autoimmune neuropsychiatric disorders associated with strep (PANDAS) – devastating, but treatable disorders. Clinical service providers need to have accurate knowledge of this disorder so they can provide correct referrals, treatment interventions and support. A clip from the award-winning documentary, “My Child is Not Crazy” will illustrate the impact of PANS/PANDAS on children and their families.
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Lyme Disease Awareness Month
Learn more about the relationship between Lyme, Tick-Borne Infections and PANS
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May is National Nurses Month
Advanced Practice Nurses are an integral part of PANS PANDAS patient care.
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Celebrate Teachers Day
Celebrate Teachers Day Learn more about PANS PANDAS at School.
National Children’s Mental Health Awareness Day
ASPIRE has created this worksheet for your child to do to highlight What Makes You Special!
http://aspire.care/featured/childrens-mental-health-awareness-day/
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School Nurse Day
Learn more about School Nurses for PANS PANDAS
Inflammatory Brain Disorders Conference
The Inflammatory Brain Disorders Conference features nationally and internationally renowned experts skilled in diagnostic and therapeutic approaches who will present a diverse range of emerging clinical and research challenges, insights, and advances in the field of inflammatory brain disorders. The conference will be held live virtually. All registrants will receive a recording of the entire conference.
PANS/PANDAS: When Strep Causes OCD, Anxiety and More
PANS/PANDAS: When Strep Causes OCD, Anxiety and More, on their facebook page
They will discuss how infectious diseases can trigger a wide range of neuropsychiatric responses. While researchers are only beginning to study and understand these syndromes, tonight you will hear the latest information on causes and treatments. Questions regarding the webinar should be directed to the contact at the link below.
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Comitato Italiano Genitori Webinar on PANS PANDAS
Featuring ASPIRE Board Members: Susan Swedo, MD and Gabriella True
They will clarify the most frequent questions that Italian parents from Comitato Italiano Genitori ask about diagnosis and treatment.
Second Annual Southern California Rare Disorders Symposium sponsored by UC Irvine on Friday
Dr. Craig Shimasaki of Moleculera Labs will be giving a presentation at the Second Annual Southern California Rare Disorders Symposium sponsored by UC Irvine on Friday, March 19th.
PANS/PANDAS Clinical Care and Research at MGH
Please join doctors from the Mass General PANDAS clinic as they present updates on various aspects of clinical care in PANS/PANDAS. They will also present new research on how to treat and diagnose these conditions.
CME Accredited Education for PANS PANDAS with PANDAS PPN & Dritan Agalliu
Register now for our live webinar: The Role of the Adaptive Immunity & Genetic Risk Factors in Vascular & Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis
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World Eating Disorder Awareness Day
Learn more about Eating Disorders and how they can relate to PANS PANDAS Read Article. ASPIRE is parterning with World Disease Disorders Organization. World Eating Disorders Action Day is a grassroots movement designed for and by people affected by an eating disorder, their families, and the medical and health professionals who support them. Uniting activists across […]
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PANS Australia Conference – Virtual
The conference is for parents and professionals and is completely online so available world-wide. It will be recorded and available for viewing for ticket holders for a period of time after the conference.
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Tourette Syndrome Awareness Day
June 7th is Tourette Syndrome Awareness Day. Come learn about PANS PANDAS and the overlap with Tourette Disorder. You can have a dual diagnosis! Read More about Tics and Motor Movements in PANS PANDAS.
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PANS PANDAS Awareness Day
Become a PANS PANDAS Champion. Get involved in PANS PANDAS Awareness Day. See's ASPIRE's PANS PANDAS Awareness Day information with easy steps to take and materials for you to use.